One of the most interesting features of AAKP is that in 1969, a group of six patients developed what remains a national organization directed by patients, for patients. AAKP was created by patients who had never met before, until they were brought together by one factor, kidney failure and the need for the then experimental process of dialysis. Twice a week, they met in the hospital ward (Kings County Hospital in Brooklyn) and while hooked up to primitive dialysis machines for 12 to 18 hours at a time they brainstormed, researched and eventually formed AAKP.

The group originally called themselves NAPH (National Association of Patients on Hemodialysis, which later changed to AAKP) and set out to inform patients and the public about kidney disease. The AAKP patients joined with others in the community to fight for the enactment of the Medicare ESRD Program, testifying before congressional committees, seeking public support and creating a newsletter (the forerunner of today’s aakpRENALIFE) to keep everyone informed. This effort was crowned with success in 1972 when Congress enacted the program that continues to provide Medicare funding for dialysis and kidney transplantation.

After winning the initial and critical battle for the Medicare ESRD Program, AAKP turned its attention to other important issues -- the need to establish a secure national organization to preserve the visibility and influence of patients with Congress and to develop national, educational and supportive programs.

Today, AAKP has grown into a nationally recognized patient organization. It remains dedicated to providing patients with the education and knowledge necessary to ensure quality of life and quality of health, a membership system of family members, patients and healthcare professionals, and national efforts to preserve the Medicare ESRD Program.