Being a parent is a challenge. Being a parent of a child with a serious and chronic illness, such as kidney disease, is an even bigger challenge. Families can easily feel as if their world is out of control, or that control is in the hands of others, even well-meaning others like their healthcare team. Whether diagnosed with early-stage chronic kidney disease (CKD), on dialysis or post transplant, families and children must find a way to blend the medical condition into their lives, paying constant attention while also giving priority to the other needs of a growing child. |