March 5, 2019 – Living Donor Protection Act – H.R. 1224/S.511

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Transplant Roundtable

U.S. Senators

U.S. Representatives

Via email

March 5, 2019

RE: Please Co-sponsor the Living Donor Protection Act - H.R. 1224/S.511

Dear Members of Congress:

On behalf of nearly 120,000 individuals currently awaiting a lifesaving donor organ, our organizations respectfully request your consideration in cosponsoring H.R.1224/S.511, the Living Donor Protection Act.

This bipartisan & bicameral legislation – introduced by Senators Kirsten Gillibrand (D-NY) & Tom Cotton (R-AR) and Representatives Jerrold Nadler (D-NY) & Jaime Herrera Beutler (R-WA) – would have a significant positive impact for those waiting for an organ by removing key barriers that inhibit living donation. The legislation would ensure that living donors can access life, disability, and long-term care insurance and take time off from work to recover from donation surgery without the threat of job loss. In 2018, nearly 6,900 individuals stepped forward as a living donor to provide the gift of life for those in need.

The Living Donor Protection Act seeks to protect living organ donors and promote organ donation in two important ways:

1. Prohibits life, disability, and long term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors simply based on their status as living donors; and

2. Amends the Family and Medical Leave Act of 1993 to specifically include living organ donation as a serious health condition for private and civil service employees.

Thank you in advance for your consideration of our request to cosponsor the Living Donor Protection Act. Please contact any of our organizations directly if you have questions or require additional information.

Alliance for Paired Donation

American Association for the Study of Liver Diseases

American Association of Kidney Patients (AAKP)

American Kidney Fund {D0824386.DOCX / 1 }

American Liver Foundation

American Nephrology Nurses Association

American Society of Nephrology

American Society of Pediatric Nephrology

American Society of Transplant Surgeons (ASTS)

American Society of Transplantation (AST)

American Transplant Foundation

Association of Organ Procurement Organizations

Dialysis Clinic, Inc.

Dialysis Patient Citizens

Donate Life America

Donor to Donor

Eye Bank Association of America

Foundation for Kidney Transplant Research

Global Liver Institute

Kidney Connection, Inc.

Kid-U-Not Living Organ Donor Fund

Living Kidney Donors Network

National Kidney Foundation

Nonprofit Kidney Care Alliance

North American Transplant Coordinators Organization (NATCO)

Northeast Kidney Foundation

Northwest Kidney Centers

PKD Foundation

Renal Physicians Association

Renal Support Network

Rogosin Institute

The John Brockington Foundation

Transplant Recipients International Organization (TRIO)

Transplant Support Organization

United Network for Organ Sharing

University of Colorado Hospital

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