Panelists
Susan E. Quaggin, MD, FASN
Past President, American Society of Nephrology (ASN); Charles Horace Mayo Professor of Medicine; Chief of Nephrology/Hypertension and Director, Feinberg; Cardiovascular and Renal Research Institute, Northwestern University
Alicia Hennie
Vice President, External Affairs; United Network of Organ Sharing (UNOS)
Peggy Tighe
Principal, Powers, Pyles, Sutter & Verville PC; Legal Counsel, American Society of Transplant Surgeons (ASTS)
Paul T. Conway
Chair of Policy and Global Affairs, American Association of Kidney Patients; former Chief of Staff, U.S. Department of Labor; former dialysis patient; 26-year kidney transplant patient
Chris Bowlin
Executive Director, Head of Public Policy and Government Affairs, CorMedix, Inc.
Laura A. Williams, MD, MPH
Chief Medical Officer, Ardelyx, Inc
Kenneth Newell, MD
Professor of Surgery, Division of Transplantation and Program Director, Abdominal Transplant Surgery Fellowship, Emory University School of Medicine; Committee Member, Transplant Therapeutics Consortium (TTC); 2024 AAKP Medal of Excellence Award Recipient
Kevin Fowler
Founder and CEO, The Voice of the Patient, Inc.; AAKP Ambassador; pre-emptive kidney transplant recipient
Paul L. Kimmel, MD, MACP, FRCP, FASN
Clinical Professor of Medicine, Emeritus, George Washington University; 2019 AAKP National Public Service Award honoree
Steven Potter, MD, FACS
Transplant Surgeon, MedStar Georgetown Transplant Institute; Professor of Surgery and Urology, Georgetown University School of Medicine; Chair, Legislative and Regulatory Committee, American Society of Transplant Surgeons (ASTS); Chair, CMMI Living Donor Demonstration Project, ASTS; 2024 AAKP Medal of Excellence Award Recipient
Moderator
Edward V. Hickey, III, USMC
President, American Association of Kidney Patients; Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient
Read and learn!
- Read Now! Kidney Patients Put Innovation and Access on
National Agenda about the United States Preventative Services
Taskforce - ICYMI! AAKP CKD Awareness Roundtable available OnDemand
- Learn about AAKP’s Patient Voice Patient Choice™
- Read Now! Statement of Policy Principles and Solutions: Living Organ Donation – a joint statement by AST, ASTS, and AAKP
- Read Now! Government Determinants of Health Must Not Impede Long-Term Access to Infection Prevention Innovations
- Issue of Serious Concern: Infection Prevention Innovation and Patient Access
- Read Now! Members of Congress urge CMS to properly classify the first and only FDA-approved antimicrobial catheter lock solution to ensure all patients have access
- Read the Home Dialysis Risk Prevention Act (H.R. 3118)
- Read Now! One Kidney for Life
- Read Now! Innovation in Transplantation: Accountability, Collaboration, and the Value of the Patient Voice
- Read Now! The Value of the Patient Voice in Kidney Transplantation
- Issue of Serious Concern: America’s Next Generation of Transplant Drugs
- Read Now! Kidney Patients Target Medicare Transplant Double Standard
- Read Now! A Closer Look – Molecular Blood Testing and Kidney Transplant Surveillance – A New Double Standard For Medicare Patients
- Read Now! Congressional Black Caucus expresses concern with recent actions taken by MoIDX to restrict access to post-transplant testing
- Read Now! Bipartisan Letters Members of Congress expresses concern with recent actions taken by MoIDX to restrict access to post-transplant testing (August 2023 Letter) (October 2023 Letter)
- Read Now! Health Equity in Transplant (HEiTC), New Report Published by AAKP Exposes Alarming Medicare Paradox
- Read Now! FDA November 9, 2023 Meeting Transcript – Endpoints and Trial Designs to Advance Drug Development in Kidney Transplantation
- Issue of Serious Concern: Access to Diagnostic Testing for Transplant Recipients
- Watch OnDemand! Remarks by AAKP Paul Conway, Chair of Policy & Global Affairs: MoIDX Open Hearing on Transplant Test (partial)
- Watch OnDemand! Remarks by AAKP Paul Conway, Chair of Policy & Global Affairs: MoIDX Open Hearing on Transplant Test (full)
- Read Now! Real Clear Politics - Medicare’s Private Contractors are Gaslighting Transplant Patients
- Read Now! The Hill – New Health Equity Coalition
- Read Now! The Wall Street Journal Editorials (Sept. 10th Editorial) (Sept. 22nd Editorial) (Sept. 26th Editorial)
Take action!
- Kidney Patients Need Access to NEW, FDA-Approved, SAFE Treatments – Sign the Petition!
- Become a KidneyVoter™! Register to vote today!
- Help Hemodialysis Patients Avoid Infections! Tell CMS to Grant Long-Term Access to New FDA-Approved Drug
- Ensure Detection of Venous Needle Dislodgement for Home Hemodialysis Patients – Visit AAKP’s Action Center
- Raise Your Voice...Take the AAKP Flash Survey on Transplant Medication!
- Transplant Therapeutics and Innovation Must Evolve – Sign the Petition!
- Order Your Copy Today! The Body’s Keeper: A Social History of Kidney Failure and Its Treatments
This event is hosted by the American Association of Kidney Patients Center for Patient Engagement and Advocacy and supported by donations from the following partners:
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