Welcome parents and caregivers!
Chronic illness of any kind in children is very difficult for both parents and children. This section on our website is dedicated to helping you and your child find support and learn about pediatric and adolescent kidney disease.
All AAKP members have the opportunity to sign-up for our bi-monthly e-newsletter, AAKP's Pediatric Kidney Pals! The e-newsletter contains AAKP news, updates on legislative information in the kidney community affecting patients/families, current articles and issues for pediatric and adolescent kidney patients, human interest stories, supportive articles and resources for parents and family members, kidney-friendly recipes approved by little eaters and much more!
List of Summer Camps
Click below for a list of summer camps that your pediatric kidney patient may be interested in attending! Camps are listed in order by State. We will update as we get new camp information. Please send updates to firstname.lastname@example.org.
Helpful Pediatric Resources
- What Every Parent Needs to Know - A Guide When Your Child Needs a Transplant - This guidebook for parents of pediatric candidates and recipients was developed by the OPTN/UNOS Patient Affairs Committee, with help from other volunteers inside and outside the UNOS volunteer system. It was vetted by the transplant community for accuracy and relevance.
- TransplantLiving: Children - This UNOS link provides an toolkit for parents, and complements What Every Parent Needs to Know.
- "Guidance on Pediatric Transplant Recipient Transition and Transfer" - This OPTN/UNOS clinically-focused guidance document was developed to give providers some basic best practices on pediatric transition to adulthood. As you know, this is an area of concern to parents (and providers!)
In support of AAKP’s Pediatric and Rare Disease Initiatives, we are pleased to offer the AAKP Cystinosis Patient Education and Activity Scholarship Program (click to read more) for those affected with cystinosis.
Articles & WebinarS
Here are some of AAKP’s most recent articles/webinars on Kidney Disease and Kids. You can also use the search box to search for key words on subjects that most interest you.
AAKP's 3-Part Series of Healthline Webinars on Pediatric Kidney Patients:
Teenage Brother and Sister Receive Kidney Transplants Together
Keeping Kids (and their Kidneys) Healthy in the Sun, By Ken Sutha, MD, PhD