Clinical Trials and Research

AAKP's role in Clinical Trials and Market Research

AAKP supports innovation in the kidney space. We are actively involved in market research - to share the patient voice and experience with renal companies and clinical trials  - to create more and better treatment options for kidney patients, so they can achieve their aspirations.

You may have heard the term “clinical trials” but wonder what that means. Is a clinical trial something you can participate in? What do you need to do to get started? We have pulled together some information that you might find helpful as you decide whether you would like to participate in a clinical trial.

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Clinical Trials and Market Research Opportunities

Below is a list of the Clinical Trials and Market Research opportunities that AAKP is partnering to raise awareness of.  You can also use the search tool below to be matched to even more opportunities.

Name Description Learn More
ALIGN Study Description: This study is testing an investigational medication, called atrasentan, that has the potential to reduce the amount of protein in urine and preserve kidney function in patients with IgA nephropathy (IgAN). Click here to read more about this opportunity.
KIDNEYCODE No-charge genetic testing and counseling to facilitate diagnosis of several rare forms of chronic kidney disease (CKD), using Invitae’s Progressive Renal Disease panel that includes 18 genes. Click here to read more about this opportunity.
Vertex Pharmaceuticals (Phase 2a Study of VX-147) The purpose of this study is to evaluate the safety, tolerability, and effectiveness of an investigational medication in individuals with a type of kidney disease called focal segmental glomerulosclerosis (FSGS) who also have specific changes in the apolipoprotein L1 (APOL1) gene. Specific changes in the APOL1 gene have been shown to contribute to FSGS disease progression. These changes can run in families and are typically present in individuals of African, Caribbean, or Latin American descent. Click here to read more about this opportunity.
TRACTION-2 Study The TRACTION-2 clinical research trial is evaluating an investigational product called GFB-887 for the potential treatment of focal segmental glomerulosclerosis (FSGS), treatment-resistant minimal change disease (TR-MCD), and diabetic nephropathy (DN). The purpose of the trial is to determine if GFB-887 is safe and may help people who have high levels of protein in their urine due to their kidney disease. Click here to read more about this opportunity.
InnAVasc Arteriovenous Graft Technology If you have kidney failure and are currently undergoing hemodialysis or are expected to require hemodialysis, you may be a candidate for a clinical study evaluating the InnAVasc Arteriovenous Graft – an investigational graft that may make the graft easier to locate under your skin, safer to stick for dialysis, more durable, less likely to bleed after your dialysis session when compared to standard care grafts, and allows for immediate use to reduce catheter time. Click here to read more about this opportunity.
TruGraf Long Term Clinical Outcomes Study The purpose of this study is to evaluate the impact of serial monitoring renal transplant patients with both TruGraf® and TRAC™ on long term outcomes. Click here to read more about this opportunity.
FALCON Study FALCON is a Phase 3 clinical study evaluating the effectiveness and safety of bardoxolone methyl (an oral investigational drug) in patients with ADPKD. The investigational drug, study-related procedures, and doctor visits will be provided at no cost. Visit PKDstudy.com for more information. Click here to read more about this opportunity.
Emerald Study Ongoing Pediatric Clinical Trial. Parents – do you have a child between the ages of 2 and 12 with kidney disease who also struggles to manage high blood potassium levels? Click here to read more about this opportunity.

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Articles
Learn more about kidney disease from fellow patients, healthcare professionals, and the renal community by reading these articles produced for AAKP.
Educational Brochures and Resources
AAKP offers a variety of educational resources for people living with kidney disease and their care partners.
aakpRENALIFE and E-Newsletters
AAKP offers a bi-monthly magazine as well as five e-newsletters. Check out our recent issues and subscribe.
HealthLine Webinars
The AAKP HealthLine is a webinar-based program educates patients and their family members on a variety of important health care topics from the comfort of their home or office.