Enhanced Patient Engagement to Improve Patient-Centered Outcomes among Chronic Kidney Disease (CKD)
Many patients with advanced chronic kidney disease (CKD) are challenged with the affects kidney failure has on their physical and mental health. Peer mentoring programs can connect patients to the experiences of similarly situated patients leading to a mutually supportive and engaged community of patients empowered with coping skills and strategies to deal with the challenges of CKD; knowledge to make optimal and informed health choices; and resources to choose the renal replacement treatment that’s right for them.
The AAKP, Emory University and Kaiser Permanente Georgia have teamed up to develop a Peer Mentorship Program aimed at increasing patient engagement and improving CKD patients’ well-being by exposing them to proven coping strategies for living well with CKD and effective strategies for choosing optimal renal replacement options.
This project will pair 150 CKD and ESRD patients with trained AAKP Mentors for a 6-month, one-on-one peer mentoring project. 23-30 Mentors in Georgia (and across the U.S) will each mentor 5-7 CKD/ESRD Atlanta-based patients who are diverse with respect to their clinical severity.
Projected Program Outcomes
- increase the number of trained Mentors;
- increase the percentage of CKD patients who are engaged with a Mentor;
- increase the percentage of vulnerable patients that receive education;
- improve knowledge of renal replacement therapy choices and coping strategies among patients with an emphasis on African-American CKD/ESRD patients;
- implement and dissemination proven interventions that support patient coping strategies and understanding of renal replacement treatment options.
Mentor Training Program
Below is an overview of the steps to becoming a mentor!
Step 1: Complete mentor application – click here. Once application is completed, you will be contacted by an AAKP represented within 72 hours to discuss your interest, provide detailed project information and answer any questions you may have. At this time, you will have the option to consent to continuing on and becoming a mentor or declining participation.
Step 2: You will be instructed to complete a series of five online training modules. The training is self-guided and collectively will take approximately 8 hours to complete. You may go through the training at your own pace however we do require mentor training be completed within four weeks. After each training module, you will be asked to complete a brief quiz to reinforce learning objectives and assess retention of information.
Step 3: Once mentorship training has been completed – you will be matched with 5-7 mentees! The mentorship project will take place over six months; mentors/mentees are required to have at minimum one interaction (in-person, video chat, telephone) per month over this six month timeframe. Additional interactions are encouraged, based on the availability of the mentor/mentee. Mentors will be asked to complete monthly Activity Logs to track engagements with their assigned mentees. Mentors will also be provided with educational resources to share with their mentees to help facilitate discussion and learning regarding renal replacement treatment options (dialysis & transplantation) and coping strategies for living with a chronic condition.
Step 4: Final project evaluation. At the end of the six month interaction period, both the mentors and mentees will be required to complete a survey to assist the project team’s analysis of outcomes and behavioral changes.
The Enhanced Patient Engagement to Improve Patient-Centered Outcomes among Chronic Kidney Disease (CKD) Project is supported by a Eugene Washington Engagement Award (AAKP-EADI-14537) from the Patient-Centered Outcomes Research Institute (PCORI).