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Edward V. Hickey, III, USMC, AAKP President, Chair, AAKP Veterans Health Initiative, current chronic kidney disease patient
and
Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
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COVID-19 and Palliative Care: Observations, Extrapolations, and Cautions

COVID-19

Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
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An Honorable and Ongoing Fight: Protecting Organ Transplant Recipients against COVID-19 in the Age of Disinformation

COVID-19

Glenda V. Roberts, AAKP Ambassador, kidney transplant recipient
and
Patrick Gee, PhD, AAKP Ambassador, former home dialysis patient, current transplant recipient
--

The Early Days: The Post Kidney Transplant Recipients’ COVID-19 Journey

COVID-19

Co-Authored by Janice Lea, MD, MSC, FASN, AAKP National Board Member
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Age, Comorbid Conditions, and Racial Disparities in COVID-19 Outcomes

COVID-19

Edward V. Hickey, III, USMC, AAKP President; Chair, AAKP Veterans Health Initiative, current chronic kidney disease patient
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12 Tips to Nephrology Teams Supporting Patients with Advanced Kidney Disease: An Advocate’s Dozen

Care Management, Nomenclature, and Technology

Nichole Jefferson, AAKP Ambassador, former dialysis patient, current transplant recipient
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A Patient’s View on Exercise and ESKD

Care Management, Nomenclature, and Technology

Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
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Nephrology Nomenclature: How to Accelerate Patient Anxiety, Suppress Engagement, and Mire the Advance of Medical Innovation

Care Management, Nomenclature, and Technology

Dale Rogers, AAKP Secretary, Ambassador, former dialysis patient, current transplant recipient
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Patient Perspective of Smartphone-Based Apps for CKD Self-Care

Care Management, Nomenclature, and Technology

Lana Schmidt, AAKP National Board Member, former home dialysis patient, current transplant recipient
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Patients with Kidney Disease: Ready to Use Smartphones for Health Care Delivery

Care Management, Nomenclature, and Technology

Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
--

Media Analysis of the Canadian Deemed Consent Policy

 

Care Management, Nomenclature, and Technology

Co-authored by Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
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Breaking the Barriers to Innovation in Kidney Care: The Time is Now

 

Care Management, Nomenclature, and Technology

Richard A. Knight, AAKP Immediate Past President, former dialysis patient, current transplant recipient
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A Patient’s Perspective on Advancing American Kidney Health Initiative

Kidney Policy, Patient Insights, and Effective Patient Engagement

Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
and
Richard A. Knight, AAKP Immediate Past President, former dialysis patient, current transplant recipient 
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Legitimization and Incorporate of Patient Preferences

Kidney Policy, Patient Insights, and Effective Patient Engagement

Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
--

Trust Patient Insights at Both the Individual and National Level

Kidney Policy, Patient Insights, and Effective Patient Engagement

Kevin Fowler, AAKP Ambassador, transplant recipient
and
Paul T. Conway, AAKP Chair of Policy and Global Affairs, former dialysis patient, current transplant recipient
--

The New HHS Kidney Innovation Accelerator

Kidney Policy, Patient Insights, and Effective Patient Engagement

Nichole Jefferson, AAKP Ambassador, former dialysis patient, current transplant recipient
--

How Community Engagement is Enhancing NIDDK Research

Kidney Policy, Patient Insights, and Effective Patient Engagement

Co-Authored by Richard A. Knight, AAKP Immediate Past President, former dialysis patient, current transplant recipient, and Catherine Campbell, DNP, RN, MBA, CHC, CCM, FACHE, AAKP Ambassador, current transplant recipient
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A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project

Kidney Policy, Patient Insights, and Effective Patient Engagement

Suzanne Ruff, AAKP Treasurer, Living Kidney Donor
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Changing Health Disparities in Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Kidney Policy, Patient Insights, and Effective Patient Engagement

Artemeshia “Meshia” Adams, AAKP Ambassador
--

Race and Evaluation for a Kidney Transplant

Kidney Transplantation

David Rodriguez, AAKP National Board Member, Ambassador, former dialysis patient, current transplant recipient
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Kidney Disease Burden and Kidney Transplantation: A True Story

Kidney Transplantation

Richard A. Knight, AAKP Immediate Past President, former dialysis patient, current transplant recipient
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An Evolving Continuum of Care for the Kidney Disease Patient Will Help the Transplant Center Patient Navigator

Kidney Transplantation

Kevin Fowler, AAKP Ambassador, transplant recipient
--

Accountability of Dialysis Facilities in Transplant Referral

Kidney Transplantation

STAT News, Glenda V. Roberts, AAKP Ambassador, kidney transplant recipient
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Understanding my racial heritage — thanks, Ancestry.com — could have gotten me a kidney transplant earlier

Kidney Transplantation

Melissa Bensouda, current home hemodialysis patient
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Optimizing Use of Deceased Donor Kidneys: Organ Waste While We Continue to Wait

Kidney Transplantation

Michael Jack Lennon, AAKP Ambassador, transplant recipient
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Getting a Kidney: Where is the Patient Choice

Kidney Transplantation

Stephen Z. Fadem, MD, FASN, FACP; Chair, AAKP Medical Advisory Board
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Dialysis, Transplantation, and Work: Honoring the Original Intent

Kidney Transplantation

James Myers, AAKP National Board Member, Ambassador, former dialysis patient, current transplant recipient
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Patient Experiences with Home Dialysis

Dialysis Care

Daronta Briggs, AAKP Ambassador, transplant recipient
--

Disparities in Health Outcomes with Dialysis in the United States Vary by Race

Dialysis Care

Jonathan Haydak, AAKP Ambassador, former home dialysis patient, current transplant recipient
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Patient Priorities for Research Involving Peritoneal Dialysis

Dialysis Care

Cher Thomas, AAKP Member
--

A Patient’s Perspective on Benzodiazepines, Co-Dispensed Opioids, and Mortality among Patients Initiating Long-Term In-Center Hemodialysis

Dialysis Care

Jennifer Jones, USMC, AAKP Vice President, Ambassador, two-time transplant recipient
--

Depression: A Side Effect of CKD

Issues and Conditions Associated with Kidney Diseases

Kevin Fowler, AAKP Ambassador, transplant recipient
--

An ADPKD Patient’s View on Screening for Intracranial Aneurysms

Issues and Conditions Associated with Kidney Diseases

Patrick Gee, PhD, AAKP Ambassador, former home dialysis patient, current transplant recipient
--

A Nutritional Lie or Lifestyle?

Issues and Conditions Associated with Kidney Diseases

Michael Jack Lennon, AAKP Ambassador, transplant recipient
--

Diet Patterns and Kidney Disease

Issues and Conditions Associated with Kidney Diseases

Dave White, AAKP Ambassador, former dialysis patient, current transplant recipient
--

Appropriate Use of Opioids in Patients with Kidney Diseases

Issues and Conditions Associated with Kidney Diseases

 

OnDemand Presentations and Webinars:

AAKP Addresses Clinical Trials, Diversity, & Inclusion

  • Raising Awareness of Kidney Disease in Minority Communities (Click to Watch)
  • Race in Kidney Disease Research and Diagnosis (Click to Watch)
  • Innovation Starts with Research: Including Patients at the Table (Click to Watch)
  • Clinical Trials: Expanding Opportunities for All Kidney Patients in the Midst of COVID-19 and Beyond (Click to Watch)
  • Richard Knight, AAKP President, Presents Patient Perspective on Diversity in COVID-19 Clinical Trials (Click to Watch)
  • Paul T. Conway, AAKP Chair of Policy and Global Affairs’ public comment to National Academies of Sciences’ draft COVID-19 Vaccine Allocation Framework (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments on Clinical Trials

  • Clinical Trials: Best Practices for Inclusivity in Rare/Genetic Conditions (Click to Watch)
  • Who Is at Risk? Understanding the Connection Between APOL 1 Gene and Kidney Diseases (Click to Watch)
  • Kidney Research and Clinical Trials: Patients Guiding Advancements (Session 1) (Click to Watch)
  • Kidney Research and Clinical Trials: Patients Guiding Advancements (Session 2) (Click to Watch)
  • How Innovation and Community Engagement Furthers Kidney Research at NIDDK (Click to Watch)
  • Clinical Trials in Kidney Disease: International Perspective on Patient Engagement (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments on Patient Engagement in Research and Innovation

  • The Decade of the Kidney™: Bridging Oceans with Patients’ & Other Stakeholders (IDEAS) (Click to Watch)
  • Global Kidney Patient Voice™: Leading the Charge - Kidney Patients Driving Global Innovation and Independence (Click to Watch)
  • Innovation Starts with Research: Including Patients at the Table (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments and Webinars on Veterans and Kidney Diseases

  • Disease Management: Veterans Affairs Responds to Kidney Disease (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments on Diabetic Kidney Disease

  • Advancements in Diabetic Kidney Disease Treatment (Click to Watch)
  • Early Identification and Intervention Advancements in Diabetic Kidney Disease (Click to Watch)
  • Kidney Disease Management and Preemptive Treatments for Diabetic Kidney Disease (Click to Watch)
  • Emerging Research in Kidney Disease: Preemptive Treatments for Diabetic Kidney Disease (Click to Watch)
  • Treatment for CKD in Diabetes (Click to Watch)

AAKP Allies & Medical Expert Filmed Segments on Home Dialysis Therapies

  • Innovations in Home Health: Lessons from COVID-19 and the Impact on Future Kidney Care (Click to Watch)
  • Advancing Home Dialysis Care: Aligning Policies Across Agencies (Click to Watch)
  • A Global Need to Support an Ever-Growing Home Dialysis Community (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments on Emerging Research

AAKP-Hosted COVID-19 Educational Webinar Series

  • Home Dialysis: Key Learnings from COVID-19 and the Future (Click to Watch)
  • Emerging Therapies, COVID-19 Prevention, and the Immunosuppressed (Click to Watch)
  • COVID-19, the Omicron Variant, and Kidney Patients (Click to Watch)
  • COVID-19: Kidney Patient Planning for a Safe Holiday Season (Click to Watch)
  • Get the Facts: COVID-19, Monoclonal Antibody Treatments, & Immunosuppressed Kidney Patients (Click to Watch)
  • Delta Virus, Vaccines, & Kidney Patients: Ongoing Threats to Weak Immune Systems and Kidney Transplants (Click to Watch)
  • Coronavirus and Kidney Patients USA Centers for Disease Control Expert Webinar: Update on Vaccinations & Variant Strains hosted by AAKP (Click to Watch)
  • Kidney Patients and the COVID-19 Vaccine (Click to Watch)
  • Coronavirus and Kidney Patients: Planning for a Safe Holiday Season (Click to Watch)
  • Coronavirus and Kidney Patients Update- A CDC Expert Webinar hosted by AAKP (Click to Watch
  • VA Kidney Program's Response to COVID-19 (Click to Watch)
  • Back to School: COVID-19 Considerations for Pediatric Kidney Patients & Kidney Patient Households (Click to Watch )
  • Coronavirus and Kidney PatientsUSA Centers for Disease Control Expert Webinar hosted by AAKP (Click to Watch)
  • Coronavirus and Transplant Patients: Get the Facts, Save a Life hosted by AAKP in partnership with American Society of Transplantation and American Society of Transplant Surgeons (Click to Watch)
    • Taking Care of Your Dialysis Access During the COVID-19 Pandemic (Click to Watch)
    • Fighting Coronavirus Upstream - What Early Stage Kidney Disease Patients Need to Know (Click to Watch)
    • New American Telemedicine Policies & Utilization in the COVID-19 Era: What Patients Should Know (Click to Watch)
    • The USA Department of Veterans Affairs Kidney Program's Response to COVID-19 (Click to Watch)
    • Kidney Patient Mental Health Management During COVID-19: Staying Connected while Staying at Home (Click to Watch)
    • Kidney Patient Nutrition& COVID-19: The Importance of Keeping it Kidney Friendly (Click to Watch)
    • Clinical Trials: Expanding Opportunities for All Kidney Patients in the Midst of COVID-19 and Beyond (Click to Watch)
    • Diversity and Inclusion in COVID-19 Trials: Insights and Tactics (Click to Watch)

AAKP Allies & Medical Expert-Filmed Segments on COVID-19

  • Innovations in Home Health: Lessons from COVID-19 and the Impact on Future Kidney Care (Click to Watch)
  • Caring for Your Kidney Kidney in General and During COVID (Click to Watch)
  • Top Health Concerns: COVID-19 Current Efforts on Variants and Need for Vaccinations (Click to Watch)
  • Top Health Concerns: COVID-19 Implications on Transplant Patients (Click to Watch)
  • America’s Veterans: Kidney Health During COVID-19 (Click to Watch)
  • How Innovation and Community Engagement Furthers Kidney Research at NIDDK (Click to Watch)
  • Coronavirus: Treatment Immunosuppressed Populations during a Global Pandemic (Click to Watch)
  • Coronavirus: Kidney Community Stakeholder Response to Global Pandemic (Click to Watch)
  • Coronavirus: America’s Largest Kidney Innovation Collaborative Responds (Click to Watch)
  • Coronavirus: Observations of Healthcare Systems Responses to Pandemic (Nonprofit, Private, and VA) (Click to Watch)
  • Coronavirus: Accelerating the Adoption of Telehealth & Telemedicine (Click to Watch)
  • Coronavirus: Transitioning Patients from Telehealth & Telemedicine Back to In-person Care (Click to Watch)