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AAKP Kidney Patient Consumer Policy Roundtable: The Critical Need to Overcome Government Determinants of Health (GDoH)

Discussion Topic: Misalignments in Federal Regulatory and Payment Decisions Determine Patient Access to Vital Innovations

Moderator:
Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Congressional senior staff member; chronic kidney disease patient

Panelists:
• Chris Bowlin, Executive Director, Head of Public Policy and Government Affairs, CorMedix, Inc.
• Laura A. Williams, MD, MPH, Chief Medical Officer, Ardelyx, Inc.
• Paul T. Conway, Chair of Policy and Global Affairs, American Association of Kidney Patients; former Chief of Staff, U.S. Department of Labor; former dialysis patient; 26-year kidney transplant patient

This AAKP Policy Roundtable highlighted kidney health issues including the critical need for kidney disease screening, accelerating the innovation for next generation patient-centered medicine, and more intelligent and common-sense alignments of policy, law, regulation, and payment to achieve America's consensus priorities in kidney care. Learn more about https://bit.ly/AAKPRoundtables and take action by being a KidneyVoter™, visit https://bit.ly/AAKPTakeAction and https://bit.ly/AAKPVotes to raise YOUR voice and hold YOUR elected leaders accountable.

AAKP is the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options.

Government Determinants of Health: Misalignments in Regulatory & Payment Determine Patient Access

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Government Determinants of Health: Misalignments in Regulatory & Payment Determine Patient Access

AAKP HealthLine Webinar: Stop the Itch: Understanding Chronic Kidney Disease-Associated Pruritus (CKD-aP)

Are you on hemodialysis and suffer from moderate to severe itching?

If so, you may have a condition called Chronic Kidney Disease - Associate Pruritus (CKD-aP). CKD-aP is often a distressing and overlooked condition found primarily in individuals with end-stage kidney disease (ESKD), such as those on hemodialysis. It is believed to affect approximately 30-70% of kidney patients and has been associated with poor quality of life, poor sleep, depression, and increased hospitalizations and/or death in hemodialysis patients due to the risk of inflammation and infections due to an individual’s continual scratching of the skin in an attempt to satisfy the ‘itch’ which can lead to lesions or broken/damaged skin.

This webinar was supported by an educational donation from Vifor Pharma.

Speakers:
- Stephen Z. Fadem, MD, FACP, FASN; Chair, AAKP's Medical Advisory Board
- Tiffany Fisher; Kidney Transplant Recipient formerly on hemodialysis, AAKP Member

Moderator:
Erin Kahle, MPA, CNP; AAKP's Director of Patient Insights, Data Analytics, & Advocacy

Stop the Itch: Understanding Chronic Kidney Disease-Associated Pruritus (CKD-aP)

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Stop The Itch: Understanding Chronic Kidney Disease-Associated Pruritus (CKD-aP)

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