JENNIFER JONES

VICE PRESIDENT, former Executive Committee Member, U.S.M.C.

Retired Marine Veteran Jennifer Jones’ kidney journey began while deployed to Afghanistan in 2011. In what felt like a blink of an eye she went from serving as a Combat Camera Videographer to being medically retired in 2013 due to being diagnosed with a rare autoimmune disease called Membranoproliferative Glomerulonephritis (MPGN) Type 1, Idiopathic. Jennifer admits that at first she was considered a “challenging patient” because at first, she couldn’t accept the situation that she was in. She realized when she began dialysis that she had to accept her current situation and focus on what was within her control, which is becoming her own advocate and taking charge of her health and well-being. Once approved for a kidney transplant Jennifer began an active pursuit for a living altruistic donor. On April 2, 2015, she received a kidney transplant and a new sister, a selfless person who did not know her but felt compelled to save her life after hearing her story. She is passionate about kidney disease advocacy, innovation, and education. Her wish for every kidney patient is to become their own advocate, be able to properly navigate their health care system, co-create a plan with their health care team which included the dialysis modality they are comfortable with, a goal towards transplantation (if possible), and positive coping strategies. Jennifer is also a member of the Quality Insights Renal Network 5 Patient Advisory Committee, Veterans Transplantation Association, The Scientific Registry of Transplant Recipients Task 5 Steering Committee, and Rare Disease Diversity Coalition.