Articles

Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)

Jennifer Duplessie
Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease

Deb Pelaez
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).

Diana Clynes
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).
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