Articles

Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease

Deb Pelaez
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).

Diana Clynes
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).
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RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods

Diana Clynes
U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)
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RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs

Jennifer Duplessie
March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.
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Kidney Patients Expand Worldwide Impact on Medical Innovations

Jennifer Duplessie
Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives Optimism FOR IMMEDIATE RELEASE: July 13, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications & Digital Communications jrate@aakp.org (813) 400-2394 WASHINGTON, D.C.
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