October 20, 2016 David Scott What is Fabry disease? This article originally appeared in the July 2007 issue of aakpRENALIFE. Fabry disease is a rare inherited disorder first described by Drs. … Continue reading “The Genetics of Fabry Disease”
September 23, 2016 David Scott National Meeting 2016 Join us at the AAKP 2016 National Patient Meeting in Nashville! Watch our General Sessions – Streaming Live! Read More
August 28, 2016 David Scott For many adults, having to be dependent on someone else is not easy. People living with a chronic illness often experience a decline in health … Continue reading “A Caregiver’s Wish List: Tips on How Dialysis Patients Can Help Their Caregivers”
August 28, 2016 David Scott pants anymore…” “I feel bloated a lot and hate feeling like I’m pregnant – especially because I’m a guy…” “How could my partner ever want … Continue reading “How Can I Love My Body Again?”
August 28, 2016 David Scott What is Fabry disease? Fabry disease is a rare inherited disorder first described by Drs. Johann Fabry and William Anderson in 1898. It is one … Continue reading “The Genetics of Fabry Disease”
August 28, 2016 David Scott As if a diagnosis of end stage renal disease (ESRD) is not enough, according to the United States Renal Data System (USRDS) one-third of people … Continue reading “Double Whammy: The Emotional Impact of a Cancer Diagnosis”
August 28, 2016 David Scott Did you know that there are special organizations called End Stage Renal Disease (ESRD) Networks which offer a wide range of resources for ESRD patients … Continue reading “You and Your End Stage Renal Disease Network”
August 28, 2016 David Scott Many kidney patients across the United States are not made aware that there are options for them when it comes to dialysis treatments. Most of … Continue reading “There’s No Place Like Home”
August 27, 2016 David Scott As a result of an autoimmune disease, I’ve had Chronic Kidney Disease since I was in my 20’s. Suddenly in my 60’s, I was diagnosed … Continue reading “Patient Meeting Experiences”
August 27, 2016 David Scott What is UNOS and what do they do? Many patients have heard of the United Network for Organ Sharing (UNOS), but don’t know what they … Continue reading “Understanding the United Network for Organ Sharing”
