November 2, 2021 Deb Pelaez Janice Lea, MD, MSc, FASN, AAKP Executive Committee MemberThe COVID-19 pandemic incited ‘explosive growth’ in telehealth, but questions remain about how long it will be sustained. Read More
September 2, 2021 Deb Pelaez Ayla Maher was diagnosed with cystinosis when she was just two and a half years old. Ayla is now five years old and loves to play, read, work on puzzles, and especially loves creating art! Read More
September 1, 2021 Jennifer Duplessie August 31, 2021 The Honorable Chiquita Brooks-LaSure Administrator Centers for Medicare & Medicaid Services Department of Health & Human Services 7500 Security Boulevard Baltimore, MD 21244 RE: Read More
August 26, 2021 Jennifer Duplessie GLOBAL KIDNEY INNOVATION SUMMIT ACCELERATES INTERNATIONAL CONSORTIUM Patient Needs and Insights Drive New Era of Global Kidney Research, Discovery, and Personalized Treatments FOR IMMEDIATE RELEASE August 26, 2021 Washington, D.C. – The American Association of Kidney Patients (AAKP) Read More
July 1, 2021 Jennifer Duplessie Kidney Patients Launch Education and Voter Registration Drive for Independence Day Kidney Patriots™ Mobilize to Fight Disease Risks and Push for Care Innovation WASHINGTON, D.C. – The American Association of Kidney Patients (AAKP) Read More
June 25, 2021 Jennifer Duplessie FOR IMMEDIATE RELEASE: June 25, 2021 PHARMA, RESEARCH, AND MEDICAL LEADERS SAY KIDNEY PATIENTS ARE KEY TO CARE INNOVATION Kidney Patient-Led Policy Summit Targets Regulatory and Reimbursement Barriers to New Treatments WASHINGTON, D.C. – The American Association of Kidney Patients (AAKP) Read More
May 13, 2021 Jennifer Duplessie COVID Pandemic Accelerates International Consortium of Kidney Patients Seeking Care Innovations Argentine Kidney Patient Organization Joins with Largest American Kidney Organization WASHINGTON, D.C. – The American Association of Kidney Patients (AAKP) Read More
December 30, 2020 Jennifer Duplessie ERA-EDTA Council and the ERACODA Working Group* Correspondence to: Alberto Ortiz, E-mail: AOrtiz@fjd.es*A list of members of the ERA-EDTA Council and the ERACODA Working Group can be found as Acknowledgements section. Read More
December 8, 2020 Melinda Starling By Bill RyanSteven Baldridge, R.N. wrote in a recent online article, “In ancient times the kidneys were viewed as the seat of feelings, conscience, and yearnings and the source of morality and ethical activity. The kidneys were associated with the innermost parts of a person’s personality and well-being. Read More
November 13, 2020 Jennifer Duplessie November 13, 2020 Nakela Cook, MD, MPHExecutive DirectorPatient-Centered Outcomes Research Institute1828 L Street NW, Suite 900Washington, DC 20036 Dear Dr. Cook:We are writing to comment on PCORI’s Proposed Principles for the Consideration of the Full Range of Outcomes Data. Read More
