Message From AAKP President: Winter 2019

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Welcome to 2019! As we enter the new year, I want to thank AAKP’s professional staff as well as our loyal patients, caregivers, and professional members for all of their support during a very successful 2018. Also, I want to acknowledge the tremendous support received from our allies and industry partners who embraced the concept of patient engagement and have worked with us to infuse AAKP’s culture further into the renal community. Much of AAKP’s success is built upon the implementation of a National Strategy geared at leveraging our unique position within the renal community.
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April 23, 2018 –Request Funding for National Institutes of Health (NIH)

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To download the official letter – click here. April 23, 2018 Dear Chairman Cole, Chairman Blunt, Representative DeLauro, and Senator Murray: On behalf of the undersigned organizations, representing kidney patient advocates and health professionals dedicated to improving patient care, thank you for your steadfast commitment to the National Institutes of Health (NIH) and leadership, including the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).

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March 19, 2018 – Friends of NIDDK Request Funding for National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

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To download the official letter – click here. March 19, 2018 The Honorable Tom Cole Chairman Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies United States House of Representatives Washington, DC 20515 The Honorable Rosa DeLauro Ranking Member Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies United States House of Representatives Washington, DC 20515 Dear Chairman Cole and Ranking Member DeLauro:

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October 20, 2017 – H.R. 1133 Letter in Support of the Veterans Transplant Coverage Act of 2017

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October 20, 2017 Representative John R. Carter U.S. House of Representatives 2110 Rayburn House Office Building Washington D.C. 20015 Re: Letter in Support of the Veterans Transplant Coverage Act of 2017   Dear Representative Carter, The undersigned transplant patient, physician, and other provider organizations write in strong support of H.R. 1133, “The Veterans Transplant Coverage Act of 2017.” At this time, Department of Veterans Affairs (VA)

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October 16, 2017 – Protecting Access to Pain Relief (PAPR) Coalition written comments in response to a meeting of the Interagency Pain Research Coordinating Committee (IPRCC)

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October 16, 2017 Linda L. Porter, PhD Pain Policy Advisor, Office of Pain Policy Office of the Director National Institute of Neurological Disorders and Stroke 31 Center Drive, Room 8A31 Bethesda, MD 20892 Dear Dr. Porter: As undersigned members of the Protecting Access to Pain Relief (PAPR) Coalition, we wish to submit written comments in response to a meeting of the Interagency Pain Research Coordinating Committee (IPRCC) scheduled for October 23, 2017.

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October 16, 2017 – Letter to Acting Sect. Hargan on Nat’l Clinical Care Commission Act

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Eric D. Hargan                                                                                                                                                                              October 16, 2017 Acting Secretary U.S. Department of Health and Human Services Washington, D.C.

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October 7, 2017 – Joint Letter to increase transplant rates

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October 7, 2017 Dear Chairmen Brady and Walden and Ranking Members Neal and Pallone: On behalf of the undersigned organizations, we are writing to you to urge you to consider enacting legislation that would require the Centers for Medicare and Medicaid Services (CMS) to conduct a voluntary demonstration project designed to encourage transplant centers, dialysis facilities, Organ Procurement Organizations (OPOs)

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July 18, 2017 – Living Donor Protection Act Coalition Letter

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The Honorable U.S. House of Representatives Washington, DC 20515 Dear Rep. : More than 60 years since the first successful kidney transplant, hundreds of thousands of lives have been saved through the generosity of donor families and living organ donors and transplantation remains the optimal choice of kidney replacement therapy for most patients. Last year more than 19,000 Americans received a kidney transplant yet more than 97,000 are on a kidney wait list, sometimes for five or more years.

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