Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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Correspondence
Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
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May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods
U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)
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RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs
March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.
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Statement of Policy Principles and Solutions: Living Organ Donation
April 2023 Statement of Policy Principles and Solutions: Living Organ Donation As the leading, independent, national organizations representing patients, organ donors and donor families, transplant surgeons, and other transplant health professionals, the American Association of Kidney Patients (AAKP)
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AMERICAN SOCIETY OF NEPHROLOGY AND AMERICAN ASSOCIATION OF KIDNEY PATIENTS CALL ON CONGRESS TO INCREASE FUNDING FOR KIDNEY INNOVATION AND VETERANS WITH KIDNEY DISEASES
March 29, 2023 Today, more than 50 advocates from ASN and AAKP, representing people with kidney diseases and the health care professionals who serve them, will meet with their members of Congress and call for a $25 million investment in kidney innovation.
March 29, 2023 Today, more than 50 advocates from ASN and AAKP, representing people with kidney diseases and the health care professionals who serve them, will meet with their members of Congress and call for a $25 million investment in kidney innovation.
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AAKP Signs Onto Letter Regarding Nondiscrimination in Health Insurance Coverage and Other Health-Related Coverage
October 3, 2022 The Honorable Xavier Becerra Secretary, U.S. Department of Health & Human Services 200 Independence Avenue, S.W. Washington, DC 20201
Dear Secretary Becerra:
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AAKP signs onto letter to ask CMS to preserve access to critically important diagnostics and continued use of ICD-10 NOS codes
April 6, 2022 Jonathan Blum Principal Deputy Administrator and Chief Operating Officer Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 Delivered electronically Dear Mr. Blum:
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