August 27, 2016 David Scott What is UNOS and what do they do? Many patients have heard of the United Network for Organ Sharing (UNOS), but don’t know what they do. UNOS is a private, non-profit organization that runs the nation’s transplant system – known as the Organ Procurement and Transplantation Network (OPTN) Read More
August 27, 2016 David Scott The AAKP is the oldest and largest fully independent kidney patient organization in the U.S. Founded in 1969 by six dialysis patients, with doctor encouragement, our Founders helped create the End Stage Renal Disease (ESRD) Program, saving more than one million lives since 1973. Read More
July 28, 2016 Admin AAKP’s National Awards were presented at the virtual 2020 National Patient Meeting in September: AAKP national awards were presented for extraordinary leadership and excellence in the fight against kidney diseases. Read More
May 30, 2016 David Scott Patient Safety award The AAKP Patient Safety Award recognizes specific and impactful leadership and activities that exemplify the Association’s strategic goal of advancing patient safety through innovations and specific measures within health systems, both nationally and globally, that inspire actions to improve overall patient safety. Read More
May 2, 2016 David Scott What is UNOS and what do they do? Many patients have heard of the United Network for Organ Sharing (UNOS), but don’t know what they do. UNOS is a private, non-profit organization that runs the nation’s transplant system – known as the Organ Procurement and Transplantation Network (OPTN) Read More
July 1, 2025 Jennifer Duplessie June 26, 2025 Chris KlompCMS Deputy Administrator and Director of the Center for MedicareCenters for Medicare & Medicaid ServicesU.S. Department of Health and Human Services7500 Security BoulevardBaltimore, MD 212440-1850 Dear Deputy Administrator Klomp: Read More
April 22, 2025 Diana Clynes Abdou Simon’s journey began in the vibrant heart of Senegal, which is located in West Africa. West Africa is known for its rich culture and deep sense of community. Abdou had big dreams and a passion for understanding people, which led him to study Sociology at the Université Gaston Berger … Continue reading “Patient Profile: Kidney Patient and Researcher, Abdou Simon Senghor, PhD, Shares His International Kidney Journey”
March 30, 2025 Diana Clynes March is National Kidney Month. Help spread the word about kidney disease this month by sharing your personal story along with educational resources with your friends, family, and community. Kidney disease is a silent killer—let’s end the silence.In this article, AAKP Ambassadors share why they are more than their kidney … Continue reading “NATIONAL KIDNEY MONTH “I Am More Than My Kidney Disease…” AAKP Ambassadors Respond”
February 10, 2025 Deb Pelaez FIGHTING FOR THE VOICE OF PATIENTS –AAKP AMBASSADOR NIESHA NEAL’S STORY OF HEALING AND HOPEBy Deborah Pelaez, aakpRENALIFE Independent WriterNiesha was just 13 years old when she was diagnosed with type 1 diabetes. Read More
November 1, 2024 Diana Clynes Q&A with Liz Hurlburt, EVP and Chief Clinical Strategy and Operations OfficerTell us about your first experience with a kidney patient, personally or professionally, and what impressions that left on you as a fellow human being? Read More
