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Embracing Kidney Disease—AAKP Ambassador Jack Lennon shares his journey and offers tips for fellow patients and families

August 16, 2024

Born With ItYou could say Jack Lennon was born with it. “It” being kidney disease that developed at birth due to being born with Post-Urethral Valves (PUV). But he was also born with “it”, as in a loving family who would be on board throughout the good times and bad as he navigated kidney disease throughout his life.

Kidney Patients Issue National Health Alert on High Potassium

April 30, 2024

FOR IMMEDIATE RELEASE:April 30, 2024MEDIA CONTACT:Jennifer RateDirector, Communications and Digital [email protected](813)

First National Phosphorus Awareness Day Engages 50,000 People

April 11, 2024

First National Phosphorus Awareness Day Engages 50,000 PeopleKidney Patients, Families, and Professionals Advance EducationAmerican Association of Kidney Patients Expands Social ImpactWashington, D.C.: The American Association of Kidney Patients (AAKP), the oldest and largest independent kidney patient consumer organization in the U.S.

Kidney Patients Raise National Health Alert on Phosphorus

April 4, 2024

Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024Medicare Phosphorus Drug Proposal Undermines Kidney Health GoalsFor Immediate Release:April 4, 2024Media Contact:Jennifer RateDirector, Communications & Digital [email protected](813) 400-2394Washington, D.

March 31, 2024

March is National Kidney Month. Help spread the word about kidney disease this month by sharing your personal story along with educational resources with your friends, family, and community. Kidney disease is a silent killer—let’s end the silence.In this article, AAKP Ambassadors share why they are more than their kidney disease.

Kidney Patients Highlight Authors to Celebrate National Doctors Day

March 28, 2024

FOR IMMEDIATE RELEASE:March 28, 2024MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital [email protected](813) 400-2394Kidney Patients Highlight Authors to Celebrate National Doctors DayLargest Kidney Patient Group Honors Expert Authors Known for Patient AdvocacyWashington, D.C.:

March 12, 2024

Supporting OrganizationsThe National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:

New CDC Respiratory Guidance Ignores Kidney Patient Concerns

March 7, 2024

New CDC Respiratory Guidance Ignores Kidney Patient ConcernsHHS and CDC Omission Labeled a Government Determinant of HealthSerious Questions Build Over Inconsistent HHS Approach to Kidney HealthWashington, D.C.: Today, the American Association of Kidney Patients (AAKP)

Kidney Patients Target Medicare Transplant Double Standard

February 9, 2024

FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations [email protected] (813)

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

October 31, 2023

October 30, 2023The Honorable Beth Van DuyneUnited States House of Representatives1725 Longworth House Office BuildingWashington, D.C. 20515Dear Representative Van Duyne,As stakeholders in the organ donation and transplantation community, we thank you for your leadership in introducing the Saving Organs One Flight at a Time Act (H.R.