First National Phosphorus Awareness Day Engages 50,000 People Kidney Patients, Families, and Professionals Advance Education American Association of Kidney Patients Expands Social Impact Washington, D.C.: The American Association of Kidney Patients (AAKP)
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Kidney Patients Raise National Health Alert on Phosphorus
Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024 Medicare Phosphorus Drug Proposal Undermines Kidney Health Goals For Immediate Release:April 4, 2024 Media Contact:Jennifer RateDirector, Communications & Digital Operationsjrate@aakp.org(813)
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National Kidney Month: “I Am More Than My Kidney Disease…” AAKP Ambassadors Respond
March is National Kidney Month. Help spread the word about kidney disease this month by sharing your personal story along with educational resources with your friends, family, and community. Kidney disease is a silent killer—let’s end the silence.In this article, AAKP Ambassadors share why they are more than their kidney disease.
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Kidney Patients Highlight Authors to Celebrate National Doctors Day
FOR IMMEDIATE RELEASE:March 28, 2024 MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital Operationsjrate@aakp.org(813) 400-2394 Kidney Patients Highlight Authors to Celebrate National Doctors Day Largest Kidney Patient Group Honors Expert Authors Known for Patient Advocacy Washington, D.C.:
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Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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