Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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Uncategorized
New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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Kidney Patients Expand Worldwide Impact on Medical Innovations
Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives Optimism FOR IMMEDIATE RELEASE: July 13, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications & Digital Communications jrate@aakp.org (813) 400-2394 WASHINGTON, D.C.
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Global Kidney Summit Honors Former HHS Secretary Alex M. Azar
FOR IMMEDIATE RELEASE June 26, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813) 400-2394 Global Kidney Summit Honors Former HHS Secretary Alex M.
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STATEMENT: KIDNEY PATIENTS COMMEMORATE JUNETEENTH
FOR IMMEDIATE RELEASE: June 19, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations (813) 400-2394 jrate@aakp.org Washington, D.C.: The American Association of Kidney Patients (AAKP)
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STATEMENT: Ending the COVID-19 Public Health Emergency
FOR IMMEDIATE RELEASE: May 10, 2023 FOR MORE INFORMATION: Jennifer Rate Director of Communications and Digital Operations (813) 400-2394 jrate@aakp.org STATEMENT Ending the COVID-19 Public Health Emergency: DON’T FORGET KIDNEY PATIENTS – THEIR VULNERABILITES REMAIN Washington, D.C.
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