Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024Medicare Phosphorus Drug Proposal Undermines Kidney Health GoalsFor Immediate Release:April 4, 2024Media Contact:Jennifer RateDirector, Communications & Digital [email protected](813) 400-2394Washington, D.
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National Kidney Month: “I Am More Than My Kidney Disease…” AAKP Ambassadors Respond
March is National Kidney Month. Help spread the word about kidney disease this month by sharing your personal story along with educational resources with your friends, family, and community. Kidney disease is a silent killer—let’s end the silence.In this article, AAKP Ambassadors share why they are more than their kidney disease.
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Kidney Patients Highlight Authors to Celebrate National Doctors Day
FOR IMMEDIATE RELEASE:March 28, 2024MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital [email protected](813) 400-2394Kidney Patients Highlight Authors to Celebrate National Doctors DayLargest Kidney Patient Group Honors Expert Authors Known for Patient AdvocacyWashington, D.C.:
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Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting OrganizationsThe National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient ConcernsHHS and CDC Omission Labeled a Government Determinant of HealthSerious Questions Build Over Inconsistent HHS Approach to Kidney HealthWashington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations [email protected] (813)
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023The Honorable Beth Van DuyneUnited States House of Representatives1725 Longworth House Office BuildingWashington, D.C. 20515Dear Representative Van Duyne,As stakeholders in the organ donation and transplantation community, we thank you for your leadership in introducing the Saving Organs One Flight at a Time Act (H.R.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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Kidney Patients Expand Worldwide Impact on Medical Innovations
Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives OptimismFOR IMMEDIATE RELEASE:July 13, 2023MEDIA CONTACT:Jennifer RateDirector, Communications & Digital [email protected](813) 400-2394WASHINGTON, D.C.
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