By Tricia Patterson, BSN, RN Hello AAKP members. My name is Tricia Patterson, BSN, RN. I had the pleasure of attending the AAKP National Patient Meeting in Washington, DC in September and met many of you and heard some great lectures. I am a nephrology nurse and a member of the American Nephrology Nurses Association (ANNA). In recognition of “Talk about Your Medication Month”, I’m partnering with AAKP to blog about the importance of medication management. Since I donated a kidney three years ago, I am also a person with CKD who needs to carefully manage my labs and medications.Read More
By Melinda Starling, AAKP Communications Intern Daronta Briggs (Hampton, VA) was diagnosed with kidney disease in early 2008 and began hemodialysis that summer. He continued treatment until 2012, when he received a kidney transplant on October 24th. His journey didn’t end there. Being a veteran himself (Gulf War of 1990-91), Daronta finds it very important to spread awareness about kidney disease, especially to veterans.Read More
By Jim Myers, AAKP Board Member, Ambassador Posted: February 5, 2019 I have often been asked why I take such long walks. I was in my transplant doctor’s office a few months back. He gave me that look. You know the look. Like that look your Dad used too give you before the stern lecture was coming. The serious discussion lecture. He told me I was not getting enough exercise, and I should try to get out more. He suggested walking. I’ve never been an athlete. I have avoided exercise in the past. I’ve always been an academic. I hated gym class. But I knew he was right.Read More
AAKP Ambassador Mary Baliker shares her story with AAKP Pediatric Kidney Pals readers…. Written By: Deborah Pelaez, AAKP Marketing and Communications Manager Originally published in the August 2018 AAKP Pediatric Kidney Pals E-Newsletter At age nine, Mary was diagnosed with chronic kidney disease and doctors told her parents that she only had six months to live. This was in the early 1970s in Wisconsin when children did not receive dialysis; dialysis was a daylong treatment. At this time, children did not receive kidney transplants either.
Meet Pediatric Nephrologist, Dr. Ken Sutha and Learn about New Pediatric Hypertension Guidelines Written for AAKP by Dr. Ken Sutha Originally published in the June 2018, AAKP Pediatric Kidney Pals E-newsletter As a pediatric nephrologist with personal experience growing up myself with kidney disease, pediatric kidney health is a topic near and dear to my heart. . . and kidneys! First, a little about my background. I was diagnosed with nephrotic syndrome at the age of 10 after abnormal amounts of protein were found in my urine.
Written by: Kent Bressler, AAKP BOD and Ambassador, served in the United States Army June as PTSD Awareness Month and June 27 as National PTSD Awareness Day. I want you to meet Sarge, he has the answer to questions about military service and PTSD. Regardless of age or service time, if you feel you are experiencing symptoms of PTSD take advantage of Sarge’s sage advice and get help, it is never too late. WATCH SARGE’S VIDEO: https://www.facebook.Read More
CJASN ARTICLE, published April 2018, Click here. By David M. White (AAKP Board Member and Ambassador) In this issue of the Clinical Journal of the American Society of Nephrology, Ishida et al. report on an investigation using data from the US Renal Data System to investigate the effects of opioids on patients on hemodialysis (1). The timely findings of Dr. Julie Ishida and her colleagues regarding the effects of opioid use on patients on hemodialysis confirm a need for more nephrology-related pain management research. Dr.Read More
From April 2018, AAKP Pediatric Kidney Pals e-newsletter article You don’t have to be a parent of a child who has kidney disease or have been someone with pediatric kidney disease to be an advocate for this population. AAKP Board of Director’s member, Ambassador for the state of Indiana and contributing editor of AAKP’s Pediatric Kidney Pals e-newsletter, Jim Myers, has a heart for kidney kids. He was diagnosed with kidney disease in 1983, he was 25 years old. Jim was told at the time that he was young to have that diagnosis.
KIDNEY KIDS ARTICLE A Mother’s Story…Worrier to Warrior By Emily Payne Last week we celebrated my daughters first year of life, one that we were told several times would not exist. Flashing back to the excitement of our first ultrasound and learning the sex of our baby quickly turned to disparity when I was only 20 weeks along. Her kidneys were bright and enlarged and at every appointment her amniotic fluid was slowly disappearing. Without amniotic fluid her little lungs couldn’t develop and the doctors didn’t even know if she would make it to delivery.
Via E-mail Arthur Lurvey, MD, FACP, FACE Contractor Medical Director Noridian Healthcare Solutions 900 42ns Street South Fargo, North Dakota 58103 Eileen Moynihan, MD Contractor Medical Director Noridian Healthcare Solutions 900 42nd Street South Fargo, North Dakota 58103 Dear Drs. Lurvey and Moynihan: RE: LCD Reconsideration Number AB0016, Immune Globulin Intraveneous (IVIg) On behalf of the American Society of Transplantation (AST)