I am a Kidney Voter. Are you?

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  By Dale Rogers, AAKP Ambassador   It was thirty-nine years ago that I noticed politics for the first time. I got home from school on March 30, turned on the T.V. and was witness to the chaotic aftermath of the failed assassination attempt on President Ronald Reagan. It was on every channel, and even at the age of 12 it bothered me a great deal, and I vowed someday to become involved in our political system. That was also the year that my life was forever changed by type 1 juvenile diabetes, which would eventually lead to chronic kidney disease (CKD) in my life.
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AAKP 2019 National Patient Meeting – Meet The Planning Committee: Daronta Briggs

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By Melinda Starling, AAKP Communications Intern Daronta Briggs (Hampton, VA) was diagnosed with kidney disease in early 2008 and began hemodialysis that summer. He continued treatment until 2012, when he received a kidney transplant on October 24th. His journey didn’t end there. Being a veteran himself (Gulf War of 1990-91), Daronta finds it very important to spread awareness about kidney disease, especially to veterans.
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Labor Secretary Acosta Earns Patient Praise For Organ Donor Job Protections

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For Immediate Release August 31, 2018–Washington, D.C.:  The American Association of Kidney Patients (AAKP) today thanked U.S. Labor Secretary Alexander Acosta for his leadership and bold action to protect the job security of courageous Americans who wish to take time off from their jobs to donate their organs to patients in need of life-saving transplants.  The Department of Labor issued a formal opinion letter stating that Family Medical Leave Act (FMLA)
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Walking For Kidney Transplants

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By Jim Myers, AAKP Board Member, Ambassador Posted: February 5, 2019 I have often been asked why I take such long walks. I was in my transplant doctor’s office a few months back. He gave me that look. You know the look. Like that look your Dad used too give you before the stern lecture was coming. The serious discussion lecture. He told me I was not getting enough exercise, and I should try to get out more. He suggested walking. I’ve never been an athlete. I have avoided exercise in the past. I’ve always been an academic. I hated gym class. But I knew he was right.
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AAKP AMBASSADOR BRUCE TIPPETS – I’M GOING BACK TO DC FOR THE KIDNEY SUMMIT

David Scott
AAKP Ambassador, Bruce Tippets, a journalist in Utah, shares his excitement in being asked to share his kidney story at AAKP’s Capitol Hill Day in March for National Kidney Awareness Month. Read below. January 28, 2019 –When I checked my email on Jan. 9, I couldn’t believe it, but I was invited to participate March 5-6 at the National Kidney Patient Summit in Washington D.C. by American Association of Kidney Patients (AAKP). This is the second year in a row, I will be able to represent AAKP at the summit.
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ARTICLE: Appropriate Use of Opioids in Patients with Kidney Diseases

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CJASN ARTICLE, published April 2018, Click here. By David M. White (AAKP Board Member and Ambassador) In this issue of the Clinical Journal of the American Society of Nephrology, Ishida et al. report on an investigation using data from the US Renal Data System to investigate the effects of opioids on patients on hemodialysis (1). The timely findings of Dr. Julie Ishida and her colleagues regarding the effects of opioid use on patients on hemodialysis confirm a need for more nephrology-related pain management research. Dr.
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AAKP Joins National Kidney Foundation and Others On Capitol Hill

David Scott
FOR IMMEDIATE RELEASE Sarah McConnell
Marketing & Communications Manager
(800) 749-AAKP (2257)
smcconnell@aakp.org U.S. CONGRESS LISTENS TO OVER 140 KIDNEY PATIENTS
AAKP Joins National Kidney Foundation and Others On Capitol Hill
WASHINGTON, D.C.:  The American Association of Kidney Patients, (AAKP), kicked off National Kidney Month March 6-7 as a partner with the National Kidney Foundation (NKF) at the second annual Kidney Patient Summit in Washington, D.C.

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Written Testimony to the House Ways and Means Committee

David Scott
Regarding Patient Safety and Quality Issues in End Stage Renal Disease Treatment Submitted by The American Association of Kidney Patients (AAKP) December 5, 2006 The American Association of Kidney Patients (AAKP) (www.aakp.org), founded in 1969, is the nation’s only kidney patient-led and managed education and advocacy organization for people with kidney disease. AAKP serves over one million Americans annually who have either lost kidney function (and live with dialysis or transplant) or have chronic kidney disease (CKD).

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Request for expedited review of importation of additional peritoneal dialysis solution

David Scott
Margaret A. Hamburg, M.D., Commissioner of Food and Drugs U.S. Food and Drug Administration 10903 New Hampshire Avenue Silver Spring, MD 20993 Dear Dr. Hamburg: The Alliance for Home Dialysis (Alliance) is a coalition of kidney dialysis stakeholders representing patients, clinicians, providers, and industry. We have come together to promote activities and policies to facilitate treatmentchoice in dialysis care while addressing systemic barriers that limit access for patients and their families, to the many benefits of home dialysis.

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