February 14, 2020 – Dental Access Letter to HHS Secretary Azar

We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.

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We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.
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I am a Kidney Voter. Are you?

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By Dale Rogers, AAKP Ambassador

 

It was thirty-nine years ago that I noticed politics for the first time. I got home from school on March 30, turned on the T.V. and was witness to the chaotic aftermath of the failed assassination attempt on President Ronald Reagan. It was on every channel, and even at the age of 12 it bothered me a great deal, and I vowed someday to become involved in our political system. That was also the year that my life was forever changed by type 1 juvenile diabetes, which would eventually lead to chronic kidney disease (CKD) in my life. 

Fast forward to June 23, 2016. That was the day I received my second kidney transplant. During my stay at the University of Washington, I expressed my desire to help other CKD patients deal with the disease and all its nuances. My transplant nephrologist was very supportive of this desire.  In 2017, during one of my many check-ups, he suggested that I attend a transplant summit in Washington, D.C. for transplant patients, put on by the American Society of Transplantation (AST). 

It was at this summit that I began to feel the need for political advocacy, and my childhood vow to become an active voter blossomed into full fruition.  I had registered to vote when I was 18, but during the summit experienced a growing conviction that my vote and the votes of others in my position really mattered. I discovered the importance of being a KIDNEY VOTER!!! This is when I joined the American Association of Kidney Patients (AAKP) team.

There were more than 250 transplant recipients at this summit. I was not the only one. For the first time, I was able to share my experiences with people that were going through the same things. We were all there to learn and share. One of the highlights was a visit from Bill Applegate with ASTS and representatives from Capitol Hill, including; U.S. Rep. Jerry Nadler, U.S. Rep. Jaime Herrera Beutler, and U.S. Rep. Paul Ruiz. 

They told us they wanted to hear our stories, and they encouraged us to vote for policy changes that could make significant differences for each one of us suffering from CKD. Each one of us, YOU and I can make a difference with our stories and our votes. Thirty-seven million people in the United States suffer from CKD. 1 in 3 people are closely connected to someone with CKD. That is a large number. We can have an impact if we do our homework and we need to act.  

CKD is becoming an epidemic. We, collectively, have the power to make a difference and change the status quo of kidney disease care - please consider becoming a kidney voter. The days of thinking you are the only one voting for kidney disease reform is over. Thirty-seven million kidney voters that can stand with you. With this number growing daily, it is time for action. I am a KIDNEY VOTER, are YOU?

 

 

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AAKP 2019 National Patient Meeting – Meet The Planning Committee: Daronta Briggs

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By Melinda Starling, AAKP Communications Intern Daronta Briggs (Hampton, VA) was diagnosed with kidney disease in early 2008 and began hemodialysis that summer. He continued treatment until 2012, when he received a kidney transplant on October 24th. His journey didn’t end there. Being a veteran himself (Gulf War of 1990-91), Daronta finds it very important to spread awareness about kidney disease, especially to veterans.
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Labor Secretary Acosta Earns Patient Praise For Organ Donor Job Protections

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For Immediate Release August 31, 2018–Washington, D.C.:  The American Association of Kidney Patients (AAKP) today thanked U.S. Labor Secretary Alexander Acosta for his leadership and bold action to protect the job security of courageous Americans who wish to take time off from their jobs to donate their organs to patients in need of life-saving transplants.
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Walking For Kidney Transplants

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By Jim Myers, AAKP Board Member, Ambassador Posted: February 5, 2019 I have often been asked why I take such long walks. I was in my transplant doctor’s office a few months back. He gave me that look. You know the look. Like that look your Dad used too give you before the stern lecture was coming. The serious discussion lecture. He told me I was not getting enough exercise, and I should try to get out more. He suggested walking. I’ve never been an athlete. I have avoided exercise in the pas...
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AAKP AMBASSADOR BRUCE TIPPETS – I’M GOING BACK TO DC FOR THE KIDNEY SUMMIT

David Scott
AAKP Ambassador, Bruce Tippets, a journalist in Utah, shares his excitement in being asked to share his kidney story at AAKP’s Capitol Hill Day in March for National Kidney Awareness Month. Read below. January 28, 2019 –When I checked my email on Jan. 9, I couldn’t believe it, but I was invited to participate March 5-6 at the National Kidney Patient Summit in Washington D.C. by American Association of Kidney Patients (AAKP). This is the second year in a row, I will be able to repr...
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Written Testimony to the House Ways and Means Committee


David Scott
Regarding Patient Safety and Quality Issues in End Stage Renal Disease Treatment Submitted by The American Association of Kidney Patients (AAKP) December 5, 2006 The American Association of Kidney Patients (AAKP) (www.aakp.org), founded in 1969, is the nation’s only kidney patient-led and managed education and advocacy organization for people with kidney disease.

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