Q&A with Mariana Murea, MD, TwoPlus Study Principal InvestigatorTell us about your first experience with a kidney patient, personally or professionally, and what impressions that left on you as a fellow human being? One of my most impactful experiences was with a patient receiving hemodialysis treatment in the hospital.
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August 2024
Embracing Kidney Disease—AAKP Ambassador Jack Lennon shares his journey and offers tips for fellow patients and families
Born With ItYou could say Jack Lennon was born with it. “It” being kidney disease that developed at birth due to being born with Post-Urethral Valves (PUV). But he was also born with “it”, as in a loving family who would be on board throughout the good times and bad as he navigated kidney disease throughout his life.
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Cystinosis Scholarship Spotlight: Ayla and Otto Maher
Eight-year-old Ayla Maher and her 5-year-old brother Otto Maher are recipients of an AAKP Cystinosis Scholarship. They are using the funds to attend Mass Audubon’s Nature Camp.Ayla Maher was diagnosed with cystinosis when she was just two and a half years old.
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