Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Navigating Kidney Disease: A Journey of Mind and Body
By Jennifer Jones, U.S.M.C., AAKP Vice PresidentMy journey with kidney disease has been a profound lesson in the importance of nurturing both the mind and body. In May 2020, I faced a challenging period of hospital visits while battling transplant rejection and severe anemia.
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Aging in the Kidney
By Stephen Z. Fadem, MD, FASN, AAKP Medical Advisory Board ChairHave you noticed that you cannot run and tumble like a young kid? The younger people working out at the gym are far bulkier than their fathers and grandfathers – and me. On average, professional athletes retire by age 30.
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Connected Forever by Love, Kidneys, and Paintings: The Kidney Journey of Gabriel and Melissa Delgado
Gabriel and Melissa married in Half Moon Bay, California, in 2007 after many years of friendship and dating. The two moved to San Antonio, Texas, shortly after, where they had two children and successful careers. Gabriel worked in the arts, and Melissa worked in the tourism industry.
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)
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Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
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A Week at Camp Boggy Creek: AAKP Staff Member Valerie Gonzalez Shares Her Experience
Valerie Gonzalez began her career with AAKP over 18 years ago in May 2005 as an administrative assistant and now leads the entire administrative team as AAKP’s Director of Office Operations. If you have ever been to an in-person AAKP event or visited the AAKP booth at a kidney conference, you may have met Valerie over the years.
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A RESILIENT SPIRIT: THE INSPIRING STORY OF AAKP AMBASSADOR SUSAN BROWN
Susan Brown grew up in a military family. Her father, Harry Burdick, and his side of the family served in every war since the Revolutionary War. He received three Bronze Stars for his service in the 151st Infantry Division while stationed in the Philippines during World War II.
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From the Heart of a Caregiver: Bobbie Reed Shares Her Journey
The Journey BeginsBobbie Reed first became a caregiver when her son Alex was diagnosed with kidney disease shortly after he graduated from Penn State in 2013. Alex was always a healthy and athletic child and played baseball in college.
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