Page 8 – AAKP

May 28, 2023: AAKP Response to ABIM Call for Public Comment

November 16, 2023

May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

October 31, 2023

October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.

October 27, 2023

By Suzanne Ruff, kidney donor, author of The Reluctant Donor and AAKP TreasurerKidney donor Suzanne Ruff, author of The Reluctant Donor and AAKP Treasurer, sent the following heartfelt letter to thousands of living organ donors, kidney patients, families, and medical professionals on May 19, 2023.Her family has 5 living organ donors.

October 27, 2023

HD CLEAN LLC is driven to make hemodialysis safer. To achieve this goal, the company has developed a fully-patented simple, sturdy device to enclose, secure, and protect the critical connection point between dialysis bloodlines and dialysis catheters. This device is currently undergoing initial review by the FDA.

October 27, 2023

Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.

October 27, 2023

October is National Disability Employment Awareness Month (NDEAM), and the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) encourages businesses and organizations across the country to participate.

Webinars

September 15, 2023

Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?

September 1, 2023

By Jennifer Jones, USMC Veteran, AAKP Vice President, Ambassador, and two-time transplant recipientAre you looking for an incredible opportunity to learn, connect, and make a difference in the kidney patient community?

U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).

August 10, 2023

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).

Congressman Jerrold Nadler Headlines Kidney Policy Summit

The American Association of Kidney Patients (AAKP), hosted its 6th Annual Public Policy Summit entitled “Issues and Implications: What Kidney Patients Need to Know” on July 28, 2023. Congressman Jerrold Nadler (D-NY), headlined the event as an honored special guest.

August 9, 2023

May 28, 2023: AAKP Response to ABIM Call for Public Comment

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

A Letter from a Family With5 Living Kidney Donors

AAKP Innovator Series: HD Clean LLC

Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease

Members Encouraged to Participate in National Disability Employment Awareness Month (NDEAM)

Webinars

Discover the Power of Connection: Why You Should Attend the AAKP National Patient Meeting

U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

Congressman Jerrold Nadler Headlines Kidney Policy Summit