Page 2 – AAKP

Hear From AAKP Member, John De La Fuente on How AAKP’s Educational Resources Helped Him

December 22, 2024

AAKP member and dialysis patient John De La Fuente called the AAKP office to express his appreciation for our Nutritional Counter and other educational resources. John told AAKP, “Your booklet on nutrition saved my life.

December 22, 2024

By Gregory Wisont, PhD, MPH, RD, CDThe holidays are a time to indulge in celebration, love, and delicious food. Yet for people with kidney disease, managing a kidney-friendly meal plan during the holiday season may seem stressful.

Re: Extending Medicare Telehealth Flexibilities

December 9, 2024

Mike JohnsonSpeaker of the HouseCannon House Office Building, 418Washington, DC 20515The Honorable Mitch McConnellMinority Leader of the SenateRussell Senate Office Building, 317Washington, DC 20515Washington, DC 20515The Honorable Hakeem JeffriesHouse Minority LeaderRayburn House Office Building, 2433Washington, DC 20515Re:

ODRIA Stakeholder Endorsement Letter

November 6, 2024

October 31, 2024The Honorable Rob WittmanU.S. House of Representatives2055 Rayburn House Office BuildingWashington, DC 20515The Honorable Jennifer McClellanU.S. House of Representatives2417 Rayburn House Office BuildingWashington, DC 20515The Honorable Mariannette Miller-MeeksU.S.

November 1, 2024

Q&A with Liz Hurlburt, EVP and Chief Clinical Strategy and Operations OfficerTell us about your first experience with a kidney patient, personally or professionally, and what impressions that left on you as a fellow human being?

October 31, 2024

Dawn Edwards has been navigating the challenges of kidney disease for 35 years. Her journey began at age 21, when she was diagnosed with proteinuria during her pregnancy – a condition marked by the presence of protein in the urine, often a sign of kidney damage.

August 20, 2024

Q&A with Mariana Murea, MD, TwoPlus Study Principal InvestigatorTell us about your first experience with a kidney patient, personally or professionally, and what impressions that left on you as a fellow human being? One of my most impactful experiences was with a patient receiving hemodialysis treatment in the hospital.

August 16, 2024

Born With ItYou could say Jack Lennon was born with it. “It” being kidney disease that developed at birth due to being born with Post-Urethral Valves (PUV). But he was also born with “it”, as in a loving family who would be on board throughout the good times and bad as he navigated kidney disease throughout his life.

August 15, 2024

Eight-year-old Ayla Maher and her 5-year-old brother Otto Maher are recipients of an AAKP Cystinosis Scholarship. They are using the funds to attend Mass Audubon’s Nature Camp.Ayla Maher was diagnosed with cystinosis when she was just two and a half years old.

Largest Kidney Patient Group Joins Lawsuit Against Medicare

July 18, 2024

Largest Kidney Patient Group Joins Lawsuit Against MedicarePatient Choice Limited by CMS Violations of Legal and Regulatory AuthorityCMS Overreach Impacts Timely Access to Phosphorus Therapy InnovationsWASHINGTON, D.C.: The American Association of Kidney Patients (AAKP)

Hear From AAKP Member, John De La Fuente on How AAKP’s Educational Resources Helped Him

Wellness Article: Embrace the Joy of the Holiday Season

Re: Extending Medicare Telehealth Flexibilities

ODRIA Stakeholder Endorsement Letter

AAKP Innovator Series | CorMedix

Patient Profile-Sepsis Awareness Month: AAKP Ambassador Dawn Edwards

AAKP Innovator Series: TwoPlus Study, Dr. Mariana Murea, MD

Embracing Kidney Disease—AAKP Ambassador Jack Lennon shares his journey and offers tips for fellow patients and families

Cystinosis Scholarship Spotlight: Ayla and Otto Maher

Largest Kidney Patient Group Joins Lawsuit Against Medicare