The Beginning of My Journey – National Donate Life Month (Posted April 27, 2018)

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Written By: Kent Bressler, AAKP BOD and Ambassador (TX) Kip and I spent most of the night before the transplant talking about just about everything. He was his usual easy going steady self and did not seem anxious at all. I was so sick I didn’t really care my creatinine level was 17 and I was confused, weak, full of fluid and nauseated. Sleep did not come easy that night, it seemed as though all I could do was think about what was coming. I was too sick to be fearful I just didn’t know what to expect.
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ARTICLE: Appropriate Use of Opioids in Patients with Kidney Diseases

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CJASN ARTICLE, published April 2018, Click here. By David M. White (AAKP Board Member and Ambassador) In this issue of the Clinical Journal of the American Society of Nephrology, Ishida et al. report on an investigation using data from the US Renal Data System to investigate the effects of opioids on patients on hemodialysis (1). The timely findings of Dr. Julie Ishida and her colleagues regarding the effects of opioid use on patients on hemodialysis confirm a need for more nephrology-related pain management research. Dr.
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April 23, 2018 –Request Funding for National Institutes of Health (NIH)

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To download the official letter – click here. April 23, 2018 Dear Chairman Cole, Chairman Blunt, Representative DeLauro, and Senator Murray: On behalf of the undersigned organizations, representing kidney patient advocates and health professionals dedicated to improving patient care, thank you for your steadfast commitment to the National Institutes of Health (NIH) and leadership, including the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).

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Get Connected: The Benefits of Chronic Care Management Services

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Beth Chalick-Kaplan, PhD is an Outreach Specialist for Region 3 at CMS Managing your health while living with Chronic Kidney Disease (CKD) can be overwhelming. Taking multiple medications, following a special diet, and keeping appointments with different specialists while caring for your family and/or working can be difficult. Healthcare providers can also feel challenged in caring for patients with multiple chronic conditions.

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Patient Profile: Ray Harris 1-2-3 Strikes and Still Swinging at CKD

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My story starts in early spring 1998 in Baltimore, Maryland to be exact, my hometown. My career was soaring as a recent graduate and police officer for the state of Maryland. My personal life was also fruitful as I was dating my lovely wife, Lauren. I knew I was winning at life and I could only see good getting better. During my early career, as a rookie officer, I was required to work extended hours. I experienced swelling in my hands, legs and feet. I was not alarmed though, thinking back to my years of playing high school sports.

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Jim Myers: Why I’m a Pediatric Kidney Patient Advocate

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From April 2018, AAKP Pediatric Kidney Pals e-newsletter article You don’t have to be a parent of a child who has kidney disease or have been someone with pediatric kidney disease to be an advocate for this population.  AAKP Board of Director’s member, Ambassador for the state of Indiana and contributing editor of AAKP’s Pediatric Kidney Pals e-newsletter, Jim Myers, has a heart for kidney kids.  He was diagnosed with kidney disease in 1983, he was 25 years old.  Jim was told at the time that he was young to have that diagnosis.

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April is Organ Donation Month (Posted April 17, 2018)

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Written by AAKP Life Member, Betty Dowe I have two favorite bumper stickers (see pictures of them below) as a reminder of the “Gift of Life!” After two kidneys, one my husband received and one my daughter received, I know the need for Organ Donations. Single tissue donors can help 75 people. Right now there are over 116,000 people on the list for an organ transplant. My husband Don received a kidney from a 20 year old college student that was killed by a drunk driver. The donor signed up in high school. Don was a Clinical Social Worker (MSW)

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How the Will to Live Well Can Lead to Individual Strength, Inner Confidence and Spiritual Rebirth for You, In and Out of Dialysis (Updated Post April 4, 2018)

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Written By: James A Schaner for AAKP Hello. My name is James Schaner of Queen Creek, Arizona. What follows is a brief history of my journey in dialysis. I hope to help you in your quest to conquer the battle of nutritional excellence in dialysis with a military flavor. Welcome aboard, soldier. Let’s win together! My journey on dialysis began with an internship at Arizona State University in 1991. I was trained as a Medical Social Worker on a local Indian Reservation. I had to work with existing patients regarding minor financial and social adjustment issues outside of treatment.

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