Articles – Page 34

Thriving After Nearly 40 Years as a Dialysis Patient

August 27, 2016

Celia 3Spunky, comes to mind when describing Celia Kanter. The 76 year old is full of vitality and energy and isn’t afraid to speak her mind. This no non-sense, go get ‘em attitude has helped her survive as a dialysis patient for 39 years. If you’re counting, that’s more than 6,000 dialysis treatments.

Transitioning from Pediatric to Adult Kidney Care

August 27, 2016

Growing into adulthood is an exciting time in a young adult’s life! It’s a time full of new experiences, meeting new people, and personal growth. However, if the young adult has kidney disease or other chronic medical problems it can be a stressful time.

Understanding the United Network for Organ Sharing

August 27, 2016

What is UNOS and what do they do? Many patients have heard of the United Network for Organ Sharing (UNOS), but don’t know what they do. UNOS is a private, non-profit organization that runs the nation’s transplant system – known as the Organ Procurement and Transplantation Network (OPTN)

Written Testimony to the House Ways and Means Committee

August 27, 2016

Regarding Patient Safety and Quality Issues in End Stage Renal Disease Treatment Submitted by The American Association of Kidney Patients (AAKP) December 5, 2006 The American Association of Kidney Patients (AAKP) (www.aakp.org)

Support for Lifetime Immunosuppressive Drug Coverage Saves Lives and Dollars

August 27, 2016

United States House of Representatives UnitedStatesSenate Re:Support for Lifetime Immunosuppressive Drug Coverage Saves Lives and Dollars Dear Members of the US House of Representatives and the US Senate:

Request for expedited review of importation of additional peritoneal dialysis solution

August 27, 2016

Margaret A. Hamburg, M.D., Commissioner of Food and Drugs U.S. Food and Drug Administration 10903 New Hampshire Avenue Silver Spring, MD 20993 Dear Dr. Hamburg: The Alliance for Home Dialysis (Alliance) is a coalition of kidney dialysis stakeholders representing patients, clinicians, providers, and industry.

Medicare Coverage article regarding hemodialysis frequency

August 27, 2016

Dr. Bernice Hecker Noridian Healthcare Solutions 6505 216th Street, SW Suite 200 Mountlake Terrace, WA 98043 Dear Dr. Hecker: The Alliance for Home Dialysis is a coalition of kidney dialysis stakeholdersrepresenting patients, clinicians, providers,and industry.

Revised Rule for Payment Policy under the Physician Fee Schedule for 2015

August 27, 2016

Ms. Marilyn Tavenner Administrator Centers for Medicare and Medicaid Services Department of Health and Human Services 200 Independence Avenue, SW Room 310G Washington, DC 20201 Dear Ms. Tavenner: The Alliance for Home Dialysis appreciates the opportunity to provide comments to the Centers for Medicare and Medicaid Services (CMS)

AAKP & Renal Physicians Association Ask Congress to Intervene in ESA Policy Decisions

August 27, 2016

The American Association of Kidney Patients (AAKP) and Renal Physicians Association (RPA) contacted members of Congress to express our mutual concerns regarding the impact of policy decisions made by the Food and Drug Administration (FDA) and the Centers for Medicare and Medicaid Services (CMS)

The HIV Organ Policy Act , an AAKP Public Policy Priority, Is Now Law

August 27, 2016

The American Association of Kidney Patients is pleased to have been part of the advocacy efforts that led to the passage of the HIV Organ Policy Equity (HOPE) Act, which allows for the study of HIV-positive organs to be donated to those in need who are also HIV positive.