Jennifer Duplessie

Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)

March 12, 2024

Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:

New CDC Respiratory Guidance Ignores Kidney Patient Concerns

March 7, 2024

New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)

Kidney Patients Target Medicare Transplant Double Standard

February 9, 2024

FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)

January 30, 2024

January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)

November 16, 2023

May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

October 31, 2023

October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.

RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs

July 17, 2023

March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.

July 13, 2023

Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives Optimism FOR IMMEDIATE RELEASE: July 13, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications & Digital Communications jrate@aakp.org (813) 400-2394 WASHINGTON, D.C.

Patients Mark Anniversary of Historic Kidney Executive Order

July 10, 2023

Patients Mark Anniversary of Historic Kidney Executive Order Former HHS Secretary Alex Azar Says Patients and Their Insights Were Indispensable to Largest Shift in Kidney Care in 50 Years Patients Honor Azar for Global Kidney Leadership and Innovation WASHINGTON, D.C. – The American Association of Kidney Patients (AAKP)

Global Kidney Summit Honors Former HHS Secretary Alex M. Azar

June 26, 2023

FOR IMMEDIATE RELEASE June 26, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813) 400-2394 Global Kidney Summit Honors Former HHS Secretary Alex M.