Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024 Medicare Phosphorus Drug Proposal Undermines Kidney Health Goals For Immediate Release:April 4, 2024 Media Contact:Jennifer RateDirector, Communications & Digital [email protected](813)
Read More
Jennifer Rate
Kidney Patients Highlight Authors to Celebrate National Doctors Day
FOR IMMEDIATE RELEASE:March 28, 2024 MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital [email protected](813) 400-2394 Kidney Patients Highlight Authors to Celebrate National Doctors Day Largest Kidney Patient Group Honors Expert Authors Known for Patient Advocacy Washington, D.C.:
Read More
2024 World Kidney Day Statement
2024 World Kidney Day Statement American Association of Kidney Patients (AAKP) WASHINGTON, D.C.: The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the United States, issued a statement (see below)
Read More
Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
Read More
New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)
Read More
Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations [email protected] (813)
Read More
Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
Read More
May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:
Read More
Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
Read More
RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs
March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.
Read More
