Correspondence

Charlotte's Bill – Senate Letter

August 11, 2025

October 18, 2024The Honorable Bernie Sanders332 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510The Honorable Bill Cassidy455 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510 Dear Chairman Sanders and Ranking Member Cassidy, On behalf of the National Down Syndrome Society (NDSS)

July 1, 2025

June 26, 2025Chris KlompCMS Deputy Administrator and Director of the Center for MedicareCenters for Medicare & Medicaid ServicesU.S. Department of Health and Human Services7500 Security BoulevardBaltimore, MD 212440-1850Dear Deputy Administrator Klomp:

Re: Extending Medicare Telehealth Flexibilities

December 9, 2024

Mike JohnsonSpeaker of the HouseCannon House Office Building, 418Washington, DC 20515 The Honorable Mitch McConnellMinority Leader of the SenateRussell Senate Office Building, 317Washington, DC 20515Washington, DC 20515 The Honorable Hakeem JeffriesHouse Minority LeaderRayburn House Office Building, 2433Washington, DC 20515 Re:

ODRIA Stakeholder Endorsement Letter

November 6, 2024

October 31, 2024 The Honorable Rob WittmanU.S. House of Representatives2055 Rayburn House Office BuildingWashington, DC 20515 The Honorable Jennifer McClellanU.S. House of Representatives2417 Rayburn House Office BuildingWashington, DC 20515 The Honorable Mariannette Miller-MeeksU.S.

March 12, 2024

Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:

January 30, 2024

January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)

November 16, 2023

May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

October 31, 2023

October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.

August 8, 2023

U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)

RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs

July 17, 2023

March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.

Correspondence

Charlotte's Bill – Senate Letter

PIPC Letter on Medicare Negotiation Guidance

Re: Extending Medicare Telehealth Flexibilities

ODRIA Stakeholder Endorsement Letter

Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)

Organ Transportation FAA Sign-On Letter January 2024

May 28, 2023: AAKP Response to ABIM Call for Public Comment

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods

RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs