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Why Camp Counts (50 years and counting…)

August 1, 2025

By Maya Doyle, MSW, PhDBack in 2005, I wrote an article for aakpRENALIFE called “Why Camp Counts”. At that point, I had been the pediatric nephrology social worker at the Children’s Hospital at Montefiore for a few years and had taken on the role of social work coordinator for our “kidney camp” program.

July 4, 2025

AAKP Independence Day Statement 2025 Dear AAKP Members, Friends, and Allies:As we celebrate this Fourth of July, the American Association of Kidney Patients (AAKP) proudly honors the courageous men and women who took a stand for liberty and battled to free our nation from the yoke of the tyrannical King of England over 250 years ago.

July 1, 2025

June 26, 2025Chris KlompCMS Deputy Administrator and Director of the Center for MedicareCenters for Medicare & Medicaid ServicesU.S. Department of Health and Human Services7500 Security BoulevardBaltimore, MD 212440-1850Dear Deputy Administrator Klomp:

2025 World Kidney Day Statement

March 13, 2025

FOR IMMEDIATE RELEASE: March 13, 2025 MEDIA CONTACT:Jennifer RateDirector, Communications & Digital Operationsjrate@aakp.org(813) 400-2394 2025 World Kidney Day Statement American Association of Kidney Patients (AAKP) Washington, D.C.:

March 6, 2025

“Food choice was the largest struggle for me when I was at the height of kidney disease. It seemed like no matter how many good food choices I made; nothing was good enough and my labs continued to trend out of range. Potassium, phosphorous, and iron were the hardest for me to calculate and manage.

March 3, 2025

National Phosphorus Awareness Day – April 5Dawn shares this statement in support of National Phosphorus Awareness Day:“After navigating the challenges of kidney disease for 35 years, I only recently learned that elevated phosphorous not only causes brittle bones, which can lead to fractures, but also cardiac episodes.

February 10, 2025

Q&A with Laura A. Williams, MD, MPH, Chief Medical Officer, ArdelyxArdelyx is a biopharmaceutical company headquartered outside Boston, in Waltham, MA. It was founded with a mission to discover, develop and commercialize innovative, first-in-class medicines that meet significant unmet medical needs.

February 10, 2025

FIGHTING FOR THE VOICE OF PATIENTS –AAKP AMBASSADOR NIESHA NEAL’S STORY OF HEALING AND HOPEBy Deborah Pelaez, aakpRENALIFE Independent WriterNiesha was just 13 years old when she was diagnosed with type 1 diabetes.

December 22, 2024

AAKP member and dialysis patient John De La Fuente called the AAKP office to express his appreciation for our Nutritional Counter and other educational resources. John told AAKP, “Your booklet on nutrition saved my life.

ODRIA Stakeholder Endorsement Letter

November 6, 2024

October 31, 2024 The Honorable Rob WittmanU.S. House of Representatives2055 Rayburn House Office BuildingWashington, DC 20515 The Honorable Jennifer McClellanU.S. House of Representatives2417 Rayburn House Office BuildingWashington, DC 20515 The Honorable Mariannette Miller-MeeksU.S.

Uncategorized

Why Camp Counts (50 years and counting…)

AAKP Independence Day Statement 2025

PIPC Letter on Medicare Negotiation Guidance

2025 World Kidney Day Statement

AAKP Ambassador Brandi Nunez Shares Her Story for National Phosphorus Awareness Day

AAKP Ambassador and Dialysis Patient Dawn Edwards Shares Why She Supports National Phosphorus Awareness Day

AAKP Innovator Series | Ardelyx

Patient Profile: Niesha Neal

Hear From AAKP Member, John De La Fuente on How AAKP’s Educational Resources Helped Him

ODRIA Stakeholder Endorsement Letter