AAKP

Bridging the Gap: Supporting Young Adults with Kidney Disease Through Health Care Transition

August 4, 2025

By Cybele Ghossein, MD; and Andrew Vissing, MDFor the last 10 years our kidney transition program has helped hundreds of young adult kidney patients transfer care from pediatric nephrology at Ann and Robert H. Lurie Children’s Hospital to adult nephrology care at Northwestern Medicine.Here’s how it works.

August 1, 2025

Ashley Martin doesn’t remember a time when kidney disease wasn’t part of her life. Before she could read or ride a bike, she was watching her mother battle kidney disease. Their story began even before Ashley was born, when Toni’s doctors suggested to her not to wait to have children.

August 1, 2025

Caroline Ford is mom to Burkley Ford, a fun-loving and active child. In February 2021, when Burkley was just three years old, she began showing signs that something was not right with her health.Burkley and other family members had been sick with COVID-19 the previous month, but Burkley did not seem to be fully recovering.

August 1, 2025

By Maya Doyle, MSW, PhDBack in 2005, I wrote an article for aakpRENALIFE called “Why Camp Counts”. At that point, I had been the pediatric nephrology social worker at the Children’s Hospital at Montefiore for a few years and had taken on the role of social work coordinator for our “kidney camp” program.

July 4, 2025

AAKP Independence Day Statement 2025 Dear AAKP Members, Friends, and Allies:As we celebrate this Fourth of July, the American Association of Kidney Patients (AAKP) proudly honors the courageous men and women who took a stand for liberty and battled to free our nation from the yoke of the tyrannical King of England over 250 years ago.

July 1, 2025

June 26, 2025Chris KlompCMS Deputy Administrator and Director of the Center for MedicareCenters for Medicare & Medicaid ServicesU.S. Department of Health and Human Services7500 Security BoulevardBaltimore, MD 212440-1850Dear Deputy Administrator Klomp:

AMERICAN ASSOCIATION OF KIDNEY PATIENTS COMMEMORATES JUNETEENTH

June 22, 2025

STATEMENT AMERICAN ASSOCIATION OF KIDNEY PATIENTS COMMEMORATES JUNETEENTH Washington, D.C.: The American Association of Kidney Patients (AAKP), the largest and oldest independent kidney patient organization in the United States, issued the following statement from AAKP President Edward V. Hickey, III, in commemoration of Juneteenth:

June 5, 2025

By Jerome Bailey, AAKP’s Director of Patient Engagement and AdvocacyFor Jimmie Bates, a home dialysis patient, and his wife and care partner Dawn, safety and infection prevention are central to their daily lives.

June 5, 2025

Jake first met Dayna when she walked into the furniture store where he was working as a salesman in 2021. The two sparked up a conversation and almost instantly became friends. As Dayna shopped for bedroom furniture, the two chatted about her New York accent, Jake’s upcoming first trip to New York City, and much more.

June 5, 2025

By Matthew M. Goodwin, PharmD, MBA, Vice President, Medical Affairs, scPharmaceuticals IncThe primary function of the kidneys is to maintain the right balance of salt and fluid in your body. They do this by removing waste products and extra fluid through the production of urine. Chronic kidney disease (CKD)

Bridging the Gap: Supporting Young Adults with Kidney Disease Through Health Care Transition

Care Partner Profile: Ashley Martin, AAKP Ambassador “How Kidney Disease Shaped My Life”

Pediatric Patient Profile: Burkley’s One Kidney Club

Why Camp Counts (50 years and counting…)

AAKP Independence Day Statement 2025

PIPC Letter on Medicare Negotiation Guidance

AMERICAN ASSOCIATION OF KIDNEY PATIENTS COMMEMORATES JUNETEENTH

EVERY PATIENT SAFE: A Home Dialysis Patient and Care Partner’s Journey in Preventing Infections

A Life-Saving Friendship -Jake Rowland’s Journey to Becoming a Living Kidney Donor

Understanding Fluid Buildup Associated with Chronic Kidney Disease