AAKP

Fighting for Patient Choice: Why Access to Phosphorus Lowering Therapies Matters

August 13, 2025

Nearly 600,000 Americans are currently undergoing dialysis, and approximately 440,000 of them rely on phosphate-lowering therapies (PLTs) to help manage their health effectively.

August 11, 2025

Nearly 600,000 Americans are currently undergoing dialysis, and approximately 440,000 of them rely on phosphate-lowering therapies (PLTs) to help manage their health effectively.

August 11, 2025

Nearly 600,000 Americans are currently undergoing dialysis, and approximately 440,000 of them rely on phosphate-lowering therapies (PLTs) to help manage their health effectively.

August 11, 2025

October 18, 2024The Honorable Bernie Sanders332 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510The Honorable Bill Cassidy455 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510 Dear Chairman Sanders and Ranking Member Cassidy, On behalf of the National Down Syndrome Society (NDSS)

August 4, 2025

By Cybele Ghossein, MD; and Andrew Vissing, MDFor the last 10 years our kidney transition program has helped hundreds of young adult kidney patients transfer care from pediatric nephrology at Ann and Robert H. Lurie Children’s Hospital to adult nephrology care at Northwestern Medicine.Here’s how it works.

August 1, 2025

Ashley Martin doesn’t remember a time when kidney disease wasn’t part of her life. Before she could read or ride a bike, she was watching her mother battle kidney disease. Their story began even before Ashley was born, when Toni’s doctors suggested to her not to wait to have children.

August 1, 2025

Caroline Ford is mom to Burkley Ford, a fun-loving and active child. In February 2021, when Burkley was just three years old, she began showing signs that something was not right with her health.Burkley and other family members had been sick with COVID-19 the previous month, but Burkley did not seem to be fully recovering.

August 1, 2025

By Maya Doyle, MSW, PhDBack in 2005, I wrote an article for aakpRENALIFE called “Why Camp Counts”. At that point, I had been the pediatric nephrology social worker at the Children’s Hospital at Montefiore for a few years and had taken on the role of social work coordinator for our “kidney camp” program.

July 4, 2025

AAKP Independence Day Statement 2025 Dear AAKP Members, Friends, and Allies:As we celebrate this Fourth of July, the American Association of Kidney Patients (AAKP) proudly honors the courageous men and women who took a stand for liberty and battled to free our nation from the yoke of the tyrannical King of England over 250 years ago.

July 1, 2025

June 26, 2025Chris KlompCMS Deputy Administrator and Director of the Center for MedicareCenters for Medicare & Medicaid ServicesU.S. Department of Health and Human Services7500 Security BoulevardBaltimore, MD 212440-1850Dear Deputy Administrator Klomp:

Fighting for Patient Choice: Why Access to Phosphorus Lowering Therapies Matters

Fighting for His Health: A Care Partner’s View on Phosphate Management and Kidney Disease

Fighting for Health: Mihi Wickamasinghe’s Journey Managing Phosphorus on Dialysis

Charlotte's Bill – Senate Letter

Bridging the Gap: Supporting Young Adults with Kidney Disease Through Health Care Transition

Care Partner Profile: Ashley Martin, AAKP Ambassador “How Kidney Disease Shaped My Life”

Pediatric Patient Profile: Burkley’s One Kidney Club

Why Camp Counts (50 years and counting…)

AAKP Independence Day Statement 2025

PIPC Letter on Medicare Negotiation Guidance