October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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A Letter from a Family With5 Living Kidney Donors
By Suzanne Ruff, kidney donor, author of The Reluctant Donor and AAKP TreasurerKidney donor Suzanne Ruff, author of The Reluctant Donor and AAKP Treasurer, sent the following heartfelt letter to thousands of living organ donors, kidney patients, families, and medical professionals on May 19, 2023.Her family has 5 living organ donors.
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AAKP Innovator Series: HD Clean LLC
HD CLEAN LLC is driven to make hemodialysis safer. To achieve this goal, the company has developed a fully-patented simple, sturdy device to enclose, secure, and protect the critical connection point between dialysis bloodlines and dialysis catheters. This device is currently undergoing initial review by the FDA.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Members Encouraged to Participate in National Disability Employment Awareness Month (NDEAM)
October is National Disability Employment Awareness Month (NDEAM), and the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) encourages businesses and organizations across the country to participate.
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Discover the Power of Connection: Why You Should Attend the AAKP National Patient Meeting
By Jennifer Jones, USMC Veteran, AAKP Vice President, Ambassador, and two-time transplant recipientAre you looking for an incredible opportunity to learn, connect, and make a difference in the kidney patient community?
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U.S. Department of Veteran Affairs Partners with Top Kidney Advocates
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).
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Congressman Jerrold Nadler Headlines Kidney Policy Summit
The American Association of Kidney Patients (AAKP), hosted its 6th Annual Public Policy Summit entitled “Issues and Implications: What Kidney Patients Need to Know” on July 28, 2023. Congressman Jerrold Nadler (D-NY), headlined the event as an honored special guest.
The American Association of Kidney Patients (AAKP), hosted its 6th Annual Public Policy Summit entitled “Issues and Implications: What Kidney Patients Need to Know” on July 28, 2023. Congressman Jerrold Nadler (D-NY), headlined the event as an honored special guest.
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RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods
U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)
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RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs
March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways and Means United States House of Representatives Washington, DC 20515 The Honorable Frank Pallone, Jr.
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