Emergencies and disasters can strike at any moment and it’s important for patients, care partners, and families to have a plan in place.
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AAKP Wants to Help You Be Prepared for an Emergency
Living a Clean Life – AAKP Ambassador Gail Glasser Shares Her Kidney Story
Gail Glasser first discovered she had a problem with her kidneys in high school. At the age of 15, she had strep throat that went left untreated because she never told her parents. Even after her throat healed, she continued to feel unwell and eventually went to see her doctor. At first, the doctor did not find anything wrong with her.
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May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023Ms. Anamika GavhaneSenior DirectorDiscipline-Specific GovernanceAmerican Board of Internal Medicine510 Walnut Street, Suite 1700Philadelphia, PA 19106Delivered via Electronic MailDear Ms. Gavhane:
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023The Honorable Beth Van DuyneUnited States House of Representatives1725 Longworth House Office BuildingWashington, D.C. 20515Dear Representative Van Duyne,As stakeholders in the organ donation and transplantation community, we thank you for your leadership in introducing the Saving Organs One Flight at a Time Act (H.R.
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A Letter from a Family With5 Living Kidney Donors
By Suzanne Ruff, kidney donor, author of The Reluctant Donor and AAKP TreasurerKidney donor Suzanne Ruff, author of The Reluctant Donor and AAKP Treasurer, sent the following heartfelt letter to thousands of living organ donors, kidney patients, families, and medical professionals on May 19, 2023.Her family has 5 living organ donors.
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AAKP Innovator Series: HD Clean LLC
HD CLEAN LLC is driven to make hemodialysis safer. To achieve this goal, the company has developed a fully-patented simple, sturdy device to enclose, secure, and protect the critical connection point between dialysis bloodlines and dialysis catheters. This device is currently undergoing initial review by the FDA.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Members Encouraged to Participate in National Disability Employment Awareness Month (NDEAM)
October is National Disability Employment Awareness Month (NDEAM), and the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) encourages businesses and organizations across the country to participate.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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Discover the Power of Connection: Why You Should Attend the AAKP National Patient Meeting
By Jennifer Jones, USMC Veteran, AAKP Vice President, Ambassador, and two-time transplant recipientAre you looking for an incredible opportunity to learn, connect, and make a difference in the kidney patient community?
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