A Message from AAKP President, Paul Conway (Posted May 2018)

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Happy spring to our AAKP Members and Allies! We are well on our way to our National Patient Meeting in St. Petersburg, FL. By the time many of you read this message, some of you will be reading it at the annual conference! As the nation’s oldest and largest fully-independent and patient-lead organization, it is only natural that AAKP hosts the largest kidney patient meeting in America! AAKP is entering into our 50th Anniversary Year – and the kickoff of that celebration begins at the 2018 Annual Meeting!
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My Lupus Story (posted May 29, 2018)

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Written by: Iya Bekondo, AAKP AmbassadorIt was the year 2000, and I had just relocated to the United States. Word that both of my kidneys had failed was no longer news to me and my family; having suffered from Nephrotic Syndrome since age 7. I had gradually, within a period of 10 years, lost function in my kidneys and at that point was very symptomatic of kidney failure. However, there was talk about testing me for Lupus, an illness which at that time neither I nor my family knew anything about.
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What will you be doing on Memorial Day? (Posted May 25, 2018)

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Written by: Kent Bressler, AAKP BOD and Ambassador, served in the United States Army What will you be doing on May 28, 2018, Memorial Day? Many will be beginning summer vacations, schools are out, and families are together and free to do as they wish. Some will take the time to bow their heads, pray and quietly remember those men and women who gave their lives for the freedoms that we so proudly enjoy. Others will attend special services in remembrance of those active duty personnel, men and women who died serving this country.
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TOP INNOVATION AWARD FOR KIDNEY PATIENT SAFETY OPENS GRANT CYCLE

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AMERICAN ASSOCIATION OF KIDNEY PATIENTSFOR IMMEDIATE RELEASE: May 23, 2018 MORE Information:Deborah Pelaez(800) 749-AAKP / dpelaez@aakp.org TOP INNOVATION AWARD FOR KIDNEY PATIENT SAFETY OPENS GRANT CYCLE TAMPA, FL – Applications for the 2018-2019 grant cycle of the Jenny Kitsen Patient Safety Award are now available from the American Association of Kidney Patients (AAKP). Applications are due July 31, 2018.
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AAKP BOD Lana Schmidt tells why she is looking forward to the National Patient Meeting on June 8, 2018! (Posted May 23, 2018)

Lana attending convention in 2016

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Yay! I can vividly recall how excited I was the time I attended my first conference with the American Association of Kidney Patients during 2010. That year, the conference took place in Tampa, Florida. My social worker submitted my application to the Renal Network, based on what I had done working on the behalf of kidney patients, and I was selected to attend the conference. At this time, I had consistently been on dialysis for eight years. The conference was astounding! Everything was specifically for kidney patients, which I was extremely grateful for.

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KIDNEY ADVOCATES SPOTLIGHT NATIONAL GOUT AWARENESS DAY

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AMERICAN ASSOCIATION OF KIDNEY PATIENTSFOR IMMEDIATE RELEASE: May 22, 2018 MEDIA CONTACT:Deborah Pelaez(800) 749-AAKP / dpelaez@aakp.org KIDNEY ADVOCATES SPOTLIGHT NATIONAL GOUT AWARENESS DAY AAKP EXPANDS GOUT EDUCATION PROGRAMS FOR PATIENTS AND FAMILIES TAMPA, FL – The American Association of Kidney Patients (AAKP), America’s largest, independent and patient-led kidney advocacy organization, is observing May 22nd, National Gout Awareness Day, through an expansion of its educational programming around gout and kidney disease.
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