AAKP BOD and Ambassador Dave White Describes his Experience at the 2018 Summer Transplant Games of America

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By AAKP BOD and Ambassador, Dave White Dave White at the Transplant Games of America I heard a supporter yell “Go Maryland!” while I was chugging my way around the last turn into the home stretch. I saw three runners ahead of me and said to myself “oh well, no medal today.
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Grayson Lives On – Potter’s Syndrome (posted August 24, 2018)

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By Kent Bressler, AAKP BOD and Ambassador My nephew, Todd Bressler, is a kind, mellow, hardworking father of three. He and his wife Shanna found out that their fourth child, who they would name Grayson, would be born without kidneys and profoundly limited lung function. When Todd called and told me I thought immediately of Representative Jaime Hererra-Beutler, (R-WA) who received news that their child would be born without kidneys in 2013.
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AAKP Ambassador Mary Baliker shares her story

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AAKP Ambassador Mary Baliker shares her story with AAKP Pediatric Kidney Pals readers…. Written By: Deborah Pelaez, AAKP Marketing and Communications Manager Originally published in the August 2018 AAKP Pediatric Kidney Pals E-Newsletter At age nine, Mary was diagnosed with chronic kidney disease and doctors told her parents that she only had six months to live. This was in the early 1970s in Wisconsin when children did not receive dialysis; dialysis was a daylong treatment. At this time, children did not receive kidney transplants either.

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LARGEST KIDNEY PATIENT GROUP BACKS ARTIFICIAL KIDNEY DEVELOPMENT

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FOR IMMEDIATE RELEASE: August 17, 2018 MEDIA CONTACT:Deborah Pelaez, Marketing and Communications ManagerDirect: (813) 400-2394 Email: dpelaez@aakp.org LARGEST KIDNEY PATIENT GROUP BACKS ARTIFICIAL KIDNEY DEVELOPMENT Tampa, FL – The American Association of Kidney Patients (AAKP), the nation’s oldest and largest, fully independent kidney patient organization announced plans to join patient research efforts for The Kidney Project.
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Raise Your Voice! The PATIENTS Demonstration Act restricts patient choice! (posted August 14, 2018)

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The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the U.S., believes The Dialysis PATIENTS Demonstration Act (H.R. 4143 / S. 2065) severely restricts patient freedom of choice. CLICK HERE to take action on this important issue. Based on a detailed analysis with our patient and professional allies, we believe this legislation is contrary to the best interests of patients. Instead, it protects the status quo in kidney care at the cost of patient freedom and meaningful innovation.

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