Correspondence

December 16, 2020: AAKP & AST joint letter to FDA on importance of supporting rational clinical trial design and support for kidney transplant desensitization

December 16, 2020

December 16, 2020Nikolay P. Nikolov, MDDirector, Division of Rheumatology and Transplant MedicineFood and Drug AdministrationCenter for Drug Evaluation and ResearchDivision of Rheumatology and Transplant Medicine5901-B Ammendale RoadBeltsville, MD 20705-1266Re:

November 23, 2020

November 23, 2020Congressman Earl Blumenauer Congressman Jason Smith1111 Longworth House Office Building 2418 Rayburn House Office Building Washington, D.C.

November 13, 2020 – Partnership to Improve Patient Care (PIPC) letter commenting on PCORI’s Proposed Principles for the Consideration of the Full Range of Outcomes Data

November 13, 2020

November 13, 2020Nakela Cook, MD, MPHExecutive DirectorPatient-Centered Outcomes Research Institute1828 L Street NW, Suite 900Washington, DC 20036Dear Dr. Cook:We are writing to comment on PCORI’s Proposed Principles for the Consideration of the Full Range of Outcomes Data.

Energy and Commerce Letter

October 22, 2020

October 15, 2020The Honorable Frank Pallone Chair, Energy and Commerce Comm. 2125 Rayburn House Office BuildingWashington, DC 20515The Honorable Greg WaldenRanking Member, Energy and Commerce Comm.2322-A Rayburn House Office Building Washington, DC 20515 The Honorable Anna Eshoo Chair, Energy and Commerce Health Subc.

AST, ASTS & AAKP Request Swift Passage of S. 3353, the Comprehensive Drug Coverage for Kidney Transplant Patients Act, During the 116th Congress

July 17, 2020

July 17, 2020The Honorable Mitch McConnellMajority LeaderUnited States SenateThe Honorable Charles Grassley ChairmanFinance CommitteeUnited States SenateThe Honorable Charles SchumerMinority LeaderUnited States SenateThe Honorable Ron WydenRanking MemberFinance CommitteeUnited States SenateRE:

Proposed LCD for Percutaneous AV Fistula for Hemodialysis (DL38573)

July 17, 2020

July 17, 2020National Government Services Medical Policy UnitP.O. Box 7073Indianapolis, IN [email protected]: Craig Haug, M.D., Medical DirectorRe: Proposed LCD for Percutaneous AV Fistula for Hemodialysis (DL38573)Dear Dr. Haug:The American Association of Kidney Patients (AAKP)

July 9, 2020

Former U.S. Civil Service Director Kay C. James recognizing Office of Personnel Management Chief of Staff Paul T. Conway, Sr. Advisor Ed Flynn and Sr. Advisor for Homeland Security Edward V. Hickey III for their efforts to help secure Congressional authorization of the U.S. Department of Homeland Security in 2002. July 10, 2020 Paul T.

Thoughts on Juneteenth, From AAKP President Richard Knight

June 19, 2020

Mr. Knight is a former hemodialysis patient who received a kidney transplant for a living donor 14 years ago. AAKP is the largest kidney patient organization in America with a proud 50 year history of matching patients to companies conducting clinical trials for new therapeutics, diagnostics and devices.

Protecting Access to Pain Relief (PAPR) Coalition, Request for Comment entitled “Management of Acute and Chronic Pain”

On behalf of the undersigned members of the Protecting Access to Pain Relief (PAPR) Coalition, please find written comments in response to the Request for Comment entitled “Management of Acute and Chronic Pain” (Docket No. CDC-2020-0029) issued by the Centers for Disease Control and Prevention (CDC).

June 17, 2020

Doctors Flummoxed By Long-Term Organ Damage In COVID-19 Survivors

May 11, 2020

Talking Points Memo (TPM)By Josh KovenskyWe still don’t know how much we don’t know about COVID-19.The immediate effects of the disease are devastating.But what has confronted doctors and patients alike since American hospitals began to fill up in March has been another, deeply sobering prospect: