Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024Medicare Phosphorus Drug Proposal Undermines Kidney Health GoalsFor Immediate Release:April 4, 2024Media Contact:Jennifer RateDirector, Communications & Digital [email protected](813) 400-2394Washington, D.
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Articles
Kidney Patients Highlight Authors to Celebrate National Doctors Day
FOR IMMEDIATE RELEASE:March 28, 2024MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital [email protected](813) 400-2394Kidney Patients Highlight Authors to Celebrate National Doctors DayLargest Kidney Patient Group Honors Expert Authors Known for Patient AdvocacyWashington, D.C.:
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2024 World Kidney Day Statement
2024 World Kidney Day StatementAmerican Association of Kidney Patients (AAKP)WASHINGTON, D.C.: The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the United States, issued a statement (see below)
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Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting OrganizationsThe National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient ConcernsHHS and CDC Omission Labeled a Government Determinant of HealthSerious Questions Build Over Inconsistent HHS Approach to Kidney HealthWashington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations [email protected] (813)
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Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen:As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
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May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023Ms. Anamika GavhaneSenior DirectorDiscipline-Specific GovernanceAmerican Board of Internal Medicine510 Walnut Street, Suite 1700Philadelphia, PA 19106Delivered via Electronic MailDear Ms. Gavhane:
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023The Honorable Beth Van DuyneUnited States House of Representatives1725 Longworth House Office BuildingWashington, D.C. 20515Dear Representative Van Duyne,As stakeholders in the organ donation and transplantation community, we thank you for your leadership in introducing the Saving Organs One Flight at a Time Act (H.R.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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