FOR IMMEDIATE RELEASE:March 28, 2024 MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital Operationsjrate@aakp.org(813) 400-2394 Kidney Patients Highlight Authors to Celebrate National Doctors Day Largest Kidney Patient Group Honors Expert Authors Known for Patient Advocacy Washington, D.C.:
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Articles
2024 World Kidney Day Statement
2024 World Kidney Day Statement American Association of Kidney Patients (AAKP) WASHINGTON, D.C.: The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the United States, issued a statement (see below)
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Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:
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New CDC Respiratory Guidance Ignores Kidney Patient Concerns
New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)
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Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen: As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
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May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023 Ms. Anamika Gavhane Senior Director Discipline-Specific Governance American Board of Internal Medicine 510 Walnut Street, Suite 1700 Philadelphia, PA 19106 Delivered via Electronic Mail Dear Ms. Gavhane:
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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