Articles – Page 3

Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease

October 27, 2023

Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.

Webinars

September 15, 2023

Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?

U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).

August 10, 2023

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).

August 8, 2023

U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)

RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs

July 17, 2023

March 7, 2023The Honorable Cathy McMorris RodgersChairCommittee on Energy and CommerceUnited States House of RepresentativesWashington, DC 20515The Honorable Jason SmithChairCommittee on Ways and MeansUnited States House of RepresentativesWashington, DC 20515The Honorable Frank Pallone, Jr.

July 13, 2023

Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives OptimismFOR IMMEDIATE RELEASE:July 13, 2023MEDIA CONTACT:Jennifer RateDirector, Communications & Digital [email protected](813) 400-2394WASHINGTON, D.C.

Patients Mark Anniversary of Historic Kidney Executive Order

July 10, 2023

Patients Mark Anniversary of Historic Kidney Executive OrderFormer HHS Secretary Alex Azar Says Patients and Their Insights Were Indispensable to Largest Shift in Kidney Care in 50 Years Patients Honor Azar for Global Kidney Leadership and InnovationWASHINGTON, D.C. – The American Association of Kidney Patients (AAKP)

Global Kidney Summit Honors Former HHS Secretary Alex M. Azar

June 26, 2023

FOR IMMEDIATE RELEASE June 26, 2023 MEDIA CONTACT:Jennifer RateDirector, Communications and Digital Operations [email protected](813) 400-2394Global Kidney Summit Honors Former HHS Secretary Alex M.

STATEMENT: KIDNEY PATIENTS COMMEMORATE JUNETEENTH

June 19, 2023

FOR IMMEDIATE RELEASE: June 19, 2023MEDIA CONTACT:Jennifer RateDirector, Communications and Digital Operations(813) [email protected], D.C.: The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in America, issued the following statement by AAKP President Edward V.

STATEMENT: Ending the COVID-19 Public Health Emergency

May 10, 2023

FOR IMMEDIATE RELEASE:May 10, 2023FOR MORE INFORMATION:Jennifer RateDirector of Communications and Digital Operations(813) [email protected] the COVID-19 Public Health Emergency:DON’T FORGET KIDNEY PATIENTS – THEIR VULNERABILITES REMAINWashington, D.C.