New CDC Respiratory Guidance Ignores Kidney Patient ConcernsHHS and CDC Omission Labeled a Government Determinant of HealthSerious Questions Build Over Inconsistent HHS Approach to Kidney HealthWashington, D.C.: Today, the American Association of Kidney Patients (AAKP)
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Articles
Kidney Patients Target Medicare Transplant Double Standard
FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations [email protected] (813)
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Organ Transportation FAA Sign-On Letter January 2024
January 18, 2024 Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen:As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision in the House and Senate Federal Aviation Administration (FAA)
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May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023Ms. Anamika GavhaneSenior DirectorDiscipline-Specific GovernanceAmerican Board of Internal Medicine510 Walnut Street, Suite 1700Philadelphia, PA 19106Delivered via Electronic MailDear Ms. Gavhane:
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Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023The Honorable Beth Van DuyneUnited States House of Representatives1725 Longworth House Office BuildingWashington, D.C. 20515Dear Representative Van Duyne,As stakeholders in the organ donation and transplantation community, we thank you for your leadership in introducing the Saving Organs One Flight at a Time Act (H.R.
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Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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U.S. Department of Veteran Affairs Partners with Top Kidney Advocates
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).
The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).
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RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods
U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)
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RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs
March 7, 2023The Honorable Cathy McMorris RodgersChairCommittee on Energy and CommerceUnited States House of RepresentativesWashington, DC 20515The Honorable Jason SmithChairCommittee on Ways and MeansUnited States House of RepresentativesWashington, DC 20515The Honorable Frank Pallone, Jr.
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