Advocacy

Charlotte's Bill – Senate Letter

August 11, 2025

October 18, 2024The Honorable Bernie Sanders332 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510The Honorable Bill Cassidy455 Dirksen Senate Office BuildingU.S. SenateWashington, DC 20510 Dear Chairman Sanders and Ranking Member Cassidy, On behalf of the National Down Syndrome Society (NDSS)

U.S. Department of Veteran Affairs Partners with Top Kidney Advocates

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA). The formal collaboration aims to improve health outcomes and enhance the overall quality of life for Veterans with kidney diseases and is facilitated under the Veterans Health Administration’s (VHA) National Center for Healthcare Advancement and Partnerships (HAP).

August 10, 2023

The American Association of Kidney Patients (AAKP), announced their new partnership with the U.S Department of Veterans Affairs (VA).

August 8, 2023

U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of Nutrition and Dietetics (The Academy), and National Kidney Foundation (NKF)

Largest American Kidney Group Marks Juneteenth With Call For Diversity In Clinical Trials And End To Care Disparity

The American Association of Kidney Patients (AAKP), the largest kidney patient organization in America, and the independent voice for kidney patients, issued a Juneteenth statement from AAKP President Richard Knight.

June 19, 2020

Protecting Access to Pain Relief (PAPR) Coalition, Request for Comment entitled “Management of Acute and Chronic Pain”

On behalf of the undersigned members of the Protecting Access to Pain Relief (PAPR) Coalition, please find written comments in response to the Request for Comment entitled “Management of Acute and Chronic Pain” (Docket No. CDC-2020-0029) issued by the Centers for Disease Control and Prevention (CDC).

June 17, 2020

February 14, 2020 – Dental Access Letter to HHS Secretary Azar

We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.

February 18, 2020

We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS)

September 24, 2019

By Dale Rogers, AAKP Ambassador (first published in September 2019 in AAKP's flagship magazine, aakpRENALIFE) It was thirty-nine years ago that I noticed politics for the first time. I got home from school on March 30, turned on the T.V.

AAKP 2019 National Patient Meeting – Meet The Planning Committee: Daronta Briggs

March 8, 2019

By Melinda Starling, AAKP Communications Intern Daronta Briggs (Hampton, VA) was diagnosed with kidney disease in early 2008 and began hemodialysis that summer. He continued treatment until 2012, when he received a kidney transplant on October 24th. His journey didn’t end there.

Labor Secretary Acosta Earns Patient Praise For Organ Donor Job Protections

February 11, 2019

For Immediate Release August 31, 2018–Washington, D.C.: The American Association of Kidney Patients (AAKP) today thanked U.S.

February 6, 2019

By Jim Myers, AAKP Board Member, Ambassador Posted: February 5, 2019 I have often been asked why I take such long walks. I was in my transplant doctor’s office a few months back. He gave me that look. You know the look. Like that look your Dad used too give you before the stern lecture was coming. The serious discussion lecture.