By Denise Steininger, AAKP AmbassadorMy name is Denise
Steininger. I was diagnosed with IGA Neuropathy in Dec of 2017. My creatinine went
from 2.0 to 4.0 literally overnight, and I was hospitalized for a week.
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Our Blog
AAKP strives for change by promoting and celebrating the importance of kidney health for patients across the country. This blog will allow you to connect with experts, researchers, staff and volunteers surrounding our ongoing advocacy for healthy kidneys.
Walking For Kidney Transplants
By Jim Myers, AAKP Board Member, AmbassadorPosted: February 5, 2019I have often been asked why I take such long walks. I was in my transplant doctor’s office a few months back. He gave me that look. You know the look. Like that look your Dad used too give you before the stern lecture was coming. The serious discussion lecture.
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Message From AAKP President: Winter 2019
Welcome to 2019!As we enter the new year, I want to thank AAKP’s professional staff as well as our loyal patients, caregivers, and professional members for all of their support during a very successful 2018.
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AAKP AMBASSADOR BRUCE TIPPETS – I’M GOING BACK TO DC FOR THE KIDNEY SUMMIT
AAKP Ambassador, Bruce Tippets, a journalist in Utah, shares his excitement in being asked to share his kidney story at AAKP’s Capitol Hill Day in March for National Kidney Awareness Month. Read below.January 28, 2019 –When I checked my email on Jan.
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Thriving, not just Surviving on Home Dialysis
By Melissa Bensouda, AAKP AmbassadorPhoto: Representing Missouri at RPA Advocacy Day on Capitol Hill – Dr. Gary Singer, MD; Melissa Bensouda, AAKP Ambassador MO; Kinza Bensouda (daughter)At one point in my childhood I had dreamed of becoming a nurse.
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AAKP BOD and Ambassador Dave White Describes his Experience at the 2018 Summer Transplant Games of America
By AAKP BOD and Ambassador, Dave White Dave White at the Transplant Games of America I heard a supporter yell “Go Maryland!” while I was chugging my way around the last turn into the home stretch. I saw three runners ahead of me and said to myself “oh well, no medal today.
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Grayson Lives On – Potter’s Syndrome (posted August 24, 2018)
By Kent Bressler, AAKP BOD and AmbassadorMy nephew, Todd Bressler, is a kind, mellow, hardworking father of three. He and his wife Shanna found out that their fourth child, who they would name Grayson, would be born without kidneys and profoundly limited lung function.
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Raise Your Voice! The PATIENTS Demonstration Act restricts patient choice! (posted August 14, 2018)
The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the U.S., believes The Dialysis PATIENTS Demonstration Act (H.R. 4143 / S. 2065) severely restricts patient freedom of choice. CLICK HERE to take action on this important issue.
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A Message from AAKP President, Paul Conway (July 2018)
Happy summer to every AAKP member and family! The AAKP team hopes you are enjoying yourselves this summer – AAKP started ours off with a BANG at our 43rd National Patient Meeting in St.
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Skin Cancer and Transplant Patients (Posted July 10, 2018)
Written By: Suzanne Ruff, AAKP Board of Director’s member Sun! Many of us know to protect our skin, but if you’re a kidney transplant recipient, it is especially critical! Dr. Steven F. Wolfe is a fellow of the American Academy of Dermatology and Board Certified with a practice in Mooresville, North Carolina.
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