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Embracing Kidney Disease—AAKP Ambassador Jack Lennon shares his journey and offers tips for fellow patients and families

August 16, 2024

Born With ItYou could say Jack Lennon was born with it. “It” being kidney disease that developed at birth due to being born with Post-Urethral Valves (PUV). But he was also born with “it”, as in a loving family who would be on board throughout the good times and bad as he navigated kidney disease throughout his life.

Kidney Patients Issue National Health Alert on High Potassium

April 30, 2024

FOR IMMEDIATE RELEASE:April 30, 2024MEDIA CONTACT:Jennifer RateDirector, Communications and Digital Operationsjrate@aakp.org(813)

First National Phosphorus Awareness Day Engages 50,000 People

April 11, 2024

First National Phosphorus Awareness Day Engages 50,000 People Kidney Patients, Families, and Professionals Advance Education American Association of Kidney Patients Expands Social Impact Washington, D.C.: The American Association of Kidney Patients (AAKP)

Kidney Patients Raise National Health Alert on Phosphorus

April 4, 2024

Kidney Patients Raise National Health Alert on Phosphorus First National Phosphorus Awareness Day is April 5, 2024 Medicare Phosphorus Drug Proposal Undermines Kidney Health Goals For Immediate Release:April 4, 2024 Media Contact:Jennifer RateDirector, Communications & Digital Operationsjrate@aakp.org(813)

March 31, 2024

March is National Kidney Month. Help spread the word about kidney disease this month by sharing your personal story along with educational resources with your friends, family, and community. Kidney disease is a silent killer—let’s end the silence.In this article, AAKP Ambassadors share why they are more than their kidney disease.

Kidney Patients Highlight Authors to Celebrate National Doctors Day

March 28, 2024

FOR IMMEDIATE RELEASE:March 28, 2024 MEDIA CONTACT:Jennifer Rate, Director, Communications and Digital Operationsjrate@aakp.org(813) 400-2394 Kidney Patients Highlight Authors to Celebrate National Doctors Day Largest Kidney Patient Group Honors Expert Authors Known for Patient Advocacy Washington, D.C.:

March 12, 2024

Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant Discrimination Prevention Act. The following organizations have formally supported the bill:

New CDC Respiratory Guidance Ignores Kidney Patient Concerns

March 7, 2024

New CDC Respiratory Guidance Ignores Kidney Patient Concerns HHS and CDC Omission Labeled a Government Determinant of Health Serious Questions Build Over Inconsistent HHS Approach to Kidney Health Washington, D.C.: Today, the American Association of Kidney Patients (AAKP)

Kidney Patients Target Medicare Transplant Double Standard

February 9, 2024

FOR IMMEDIATE RELEASE: February 9, 2024 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813)

Saving Organs One Flight at a Time Act Stakeholder Sign On Letter

October 31, 2023

October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.