October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C.
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Uncategorized
Kidney Transplant Gives Taiylor Kriss New Lease on Life After Lifelong Struggle with Disease
Taiylor was just 18 months old when her daycare began having concerns about discolored (greenish) urine and bowel movements. After the daycare team notified her mom, Meaghan, and after many tests, including a kidney biopsy at the University of Maryland Medical Center, Taiylor was diagnosed with X linked Alport syndrome.
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Webinars
Stop the Itch: Understanding and Managing Chronic Kidney Disease-Associated Pruritus (CKD-aP) Should You Consider Genetic Testing for Your Kidney Disease?
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Kidney Patients Expand Worldwide Impact on Medical Innovations
Kidney Patients Expand Worldwide Impact on Medical Innovations Patient-Led Global Summit on Science, Policy, and Care Choice Drives Optimism FOR IMMEDIATE RELEASE: July 13, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications & Digital Communications jrate@aakp.org (813) 400-2394 WASHINGTON, D.C.
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Global Kidney Summit Honors Former HHS Secretary Alex M. Azar
FOR IMMEDIATE RELEASE June 26, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations jrate@aakp.org (813) 400-2394 Global Kidney Summit Honors Former HHS Secretary Alex M.
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STATEMENT: KIDNEY PATIENTS COMMEMORATE JUNETEENTH
FOR IMMEDIATE RELEASE: June 19, 2023 MEDIA CONTACT: Jennifer Rate Director, Communications and Digital Operations (813) 400-2394 jrate@aakp.org Washington, D.C.: The American Association of Kidney Patients (AAKP)
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STATEMENT: Ending the COVID-19 Public Health Emergency
FOR IMMEDIATE RELEASE: May 10, 2023 FOR MORE INFORMATION: Jennifer Rate Director of Communications and Digital Operations (813) 400-2394 jrate@aakp.org STATEMENT Ending the COVID-19 Public Health Emergency: DON’T FORGET KIDNEY PATIENTS – THEIR VULNERABILITES REMAIN Washington, D.C.
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CONGRESS TARGETS BIAS AGAINST LIVING ORGAN DONORS
CONGRESS TARGETS BIAS AGAINST LIVING ORGAN DONORS LIVING DONOR PROTECTION ACT SAFEGUARDS JOBS AND INSURANCE LARGEST KIDNEY PATIENT GROUP MOBILIZES TO BACK CONGRESS Washington, D.C.: The American Association of Kidney Patients (AAKP)
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Statement of Policy Principles and Solutions: Living Organ Donation
April 2023 Statement of Policy Principles and Solutions: Living Organ Donation As the leading, independent, national organizations representing patients, organ donors and donor families, transplant surgeons, and other transplant health professionals, the American Association of Kidney Patients (AAKP)
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A Special Tribute to Richard Knight: AAKP President 2018-2022
Richard Knight shares some thoughts as his term as AAKP President ends. It has been more than an honor to have you serve as President of the AAKP. Can you share with us what inspired you to get involved with the organization back in 2008? In 2008, I worked with Network 5’s Patient Advisory Committee (PAC).
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