As an extension of AAKP’s National Strategy, AAKP participates in key initiatives that allow us to engage kidney patients in substantive and meaningful efforts designed to impact research over the long-term and help lead to new innovations for medical devices (including diagnostics)
Read More
What a Living Donor Thinks of Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2020
By Suzanne RuffWhen my sister collapsed in critical condition because her kidneys had failed, I offered to become a living kidney donor for her. I immediately regretted my offer. It was sixteen years ago. I had never had surgery.
Read More
TOP U.S. KIDNEY PATIENT GROUP UNVEILS NEW BOARD OFFICERS AND DIRECTORS
VETERAN VOICES REPRESENTED BY U.S. MARINES AND U.S. ARMY WASHINGTON, D.C. – The American Association of Kidney Patients (AAKP) announced results of their recent 2020-2021 Board Officers and Directors elections.
Read More
GRANT CYCLE OPENS FOR KIDNEY PATIENT SAFETY INNOVATIONS
FOR IMMEDIATE RELEASE September 4, 2020 TAMPA, FL – The American Association of Kidney Patients (AAKP), the oldest and largest fully independent kidney patient organization in America, announced the opening of the 2021 grant cycle for its AAKP Jenny Kitsen Patient Safety Award.
Read More
PKD Awareness Day 2020
By Jim Myers, AAKP BOD/AmbassadorHow does one normally become aware of Polycystic Kidney Disease? In my case, I became aware through my Father. I’m 62 now. This is about the same age my Dad was when he first told me he had PKD. He had been to the Mayo Clinic for a checkup, and he reported to me that he had “kidney disease.
Read More
Fluid Balance and the Power of Plants
By Kristi Edwards, RDNSummer is HERE, and it is hot…hot…hot! And while some may reach for a Route 44 beverage after being in the hot sun all day, individuals with kidney disease think twice. With impaired kidney function, drinking a lot of fluid can cause some unwanted, and even harmful, side effects.
Read More
Innovator Series: Aurinia Pharmaceuticals, Inc.
By Robert Huizinga, Ph.D., R.N., CNeph©, Executive Vice President, Corporate Development and Neil Solomons, MD, Chief Medical Officer at Aurinia Pharmaceuticals1. Tell us about your first experience with a kidney patient, personal or professional, and what impressions that left on you as a fellow human being. RH:
Read More
How Are We Going to Open Up Safely?
By Stephen Z. Fadem, MD, FASN, Chairman, Medical Advisory Board AAKPIntroduction The COVID-19 pandemic has taken the world by surrise and been costly in terms of life. As of May 27, 2020, there were over 100,000 deaths related to COVID-19 in the United States. By June 8, another 11,700 had died (Source: https://coronavirus.jhu.edu/map.html)
Read More
Of Presidents, Policies, & Patients
By Paul T. Conway, AAKP Chair of Policy and Global Affairs and immediate past president and Edward V. Hickey III, U.S.M.C., AAKP Board Secretary(first published in August 2020 in AAKP's flagship magazine, aakpRENALIFE)
Read More
20 TRANSPLANT ROUND TABLE GROUPS ASK CONGRESS TO PASS IMMUNO DRUG COVERAGE
RE: Recent CMS and CBO Actions Should Propel Action on S.3353, the Comprehensive Drug Coverage for Kidney Transplant Patients Act, During the 116th Congress Dear Majority Leader McConnell, Minority Leader Schumer, Chairman Grassley and Ranking Member Wyden:
Read More




