Public Comments & Correspondence
This section includes public comments & correspondence made by the American Association of Kidney Patients staff or board members individually or in conjunction with other organizations.
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2024
ODRIA Stakeholder Endorsement Letter
October 31, 2024The Honorable Rob WittmanU.S. House of Representatives2055 Rayburn House Office BuildingWashington, DC 20515The Honorable Jennifer McClellanU.S. House of Representatives2417 Rayburn House Office BuildingWashington, DC 20515The Honorable Mariannette Miller-MeeksU.S. … Continue reading "AAKP Key Correspondence" Read More
Charlotte Woodward Organ Transplant Discrimination Prevention Act (H.R. 2706/S. 1183)
Supporting Organizations The National Down Syndrome Society (NDSS) works collaboratively with a group of diverse stakeholders representing the disability and medical community to advocate for the Charlotte Woodward Organ Transplant … Continue reading "AAKP Key Correspondence" Read More
Organ Transportation FAA Sign-On Letter January 2024
Dear Chair Cantwell, Ranking Member Cruz, Chair Graves, and Ranking Member Larsen:As stakeholders in the organ donation and transplant community, we appreciate your leadership in including an organ transportation provision … Continue reading "AAKP Key Correspondence" Read More
2023
May 28, 2023: AAKP Response to ABIM Call for Public Comment
May 28, 2023Ms. Anamika GavhaneSenior DirectorDiscipline-Specific GovernanceAmerican Board of Internal Medicine510 Walnut Street, Suite 1700Philadelphia, PA 19106Delivered via Electronic MailDear Ms. Gavhane:On behalf of the Board of Directors, Medical … Continue reading "AAKP Key Correspondence" Read More
Saving Organs One Flight at a Time Act Stakeholder Sign On Letter
October 30, 2023 The Honorable Beth Van Duyne United States House of Representatives 1725 Longworth House Office Building Washington, D.C. 20515 Dear Representative Van Duyne, As stakeholders in the organ … Continue reading "AAKP Key Correspondence" Read More
RE: FDA Proposal to Permit Salt Substitutes to Reduce Sodium in Standardized Foods
U.S. Food and Drug AdministrationDockets Management Staff (HFA-305)5630 Fishers Lane, rm. 1061Rockville, MD 20852 This letter represents a collaborative effort of the American Association of Kidney Patients (AAKP), Academy of … Continue reading "AAKP Key Correspondence" Read More
RE: Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs
March 7, 2023 The Honorable Cathy McMorris Rodgers Chair Committee on Energy and Commerce United States House of Representatives Washington, DC 20515 The Honorable Jason Smith Chair Committee on Ways … Continue reading "AAKP Key Correspondence" Read More
Statement of Policy Principles and Solutions: Living Organ Donation
April 2023Statement of Policy Principles and Solutions: Living Organ DonationAs the leading, independent, national organizations representing patients, organ donors and donor families, transplant surgeons, and other transplant health professionals, the … Continue reading "AAKP Key Correspondence" Read More
AMERICAN SOCIETY OF NEPHROLOGY AND AMERICAN ASSOCIATION OF KIDNEY PATIENTS CALL ON CONGRESS TO INCREASE FUNDING FOR KIDNEY INNOVATION AND VETERANS WITH KIDNEY DISEASES
March 29, 2023 Today, more than 50 advocates from ASN and AAKP, representing people with kidney diseases and the health care professionals who serve them, will meet with their members of Congress and call for a $25 million investment in kidney innovation. Read More
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