PAUL T. CONWAY - PRESIDENT
Mr. Conway serves as President of American Association of Kidney Patients (AAKP), America’s oldest and largest independent kidney patient health education and advocacy organization. Mr. Conway has managed kidney disease for thirty-seven years, including more than two years on dialysis and, for the past twenty years, as a kidney transplant recipient. He is actively involved in multiple patient-centered national health care transformation initiatives aimed at increasing the inclusion of patient preference information (PPI) and patient reported outcome (PRO) data across Federally-administered and funded programs and evaluation processes. He was recently named by the U.S. Food and Drug Administration as the Chair of the new FDA Patient Engagement and Advocacy Committee (PEAC) for medical devices and by was selected by the National Institutes of Health (NIH) to serve as a Member of the External Evaluation Panel for the NIH Kidney Precision Medicine Project (KPMP). He serves as a Patient Voice Editor for the Clinical Journal of the American Society of Nephrology (CJASN) and is the recipient of a 2017 President’s Medal from the American Society of Nephrology (ASN). READ MORE
RICHARD KNIGHT, MBA - VICE PRESIDENT, CHAIR OF PUBLIC POLICY COMMITTEE
Richard A. Knight is a former hemodialysis patient who received a kidney transplant approximately eleven years ago. He is Vice President of the American Association of Kidney Patients (AAKP) and Chair of the Public Policy Committee and a member of the Board of Directors of the Mid Atlantic Renal Coalition (MARC). He was recently appointed to the Steering Committee of the Kidney Precision Medicine Project (KPMP) housed at the National Institutes of Health (NIH) National Diabetes and Digestive and Kidney Diseases (NIDDK).
Mr. Knight has a background in public policy and Congressional operations based on both his professional experience on Capitol Hill where he served in various roles including communications, policy and Legislative Director as well his advocacy work as a kidney transplant patient. While working in the U.S. House of Representatives, Mr. Knight was served as a liaison to the Congressional Black Caucus for his Member of Congress and was involved in substantial work with the House Energy and Commerce and Small Business Committees. Mr. Knight’s knowledge of Executive Branch agency budget and procurement policies is based on direct experience as a Federal government contractor and as a ten-year co-chair of the Baltimore Washington Corridor Chamber of Commerce annual regional government procurement fair. READ MORE
JENNY KITSEN - TREASURER
Ms. Kitsen has over 45 years of experience in the field of end stage renal disease. She began her career as a renal social worker at Yale New Haven Hospital for 10 years. For 35 years, she served as executive director for the End Stage Renal Disease Network of New England. She has participated in several advisory task forces and HHS funded projects. She has specific interest in and has published articles on topics related to quality improvement, patient safety, end of life management and ESRD public policy. Currently, she is treasurer of Donate Life CT, serves on the board of the American Association of Kidney Patients and is doing consultant work for nonprofit organizations. She has worked many years to promote patient empowerment and believes in the Mission of AAKP.
DAN ABEL - SECRETARY
Mr. Abel is a kidney transplant patient from Morgantown, West Virginia. Mr. Abel is a self-employed Property Manager for Abel Enterprises, LLC. He currently owns and manages residential and commercial properties, including one large dialysis facility and a facility housing a large CKD clinic, both in rural West Virginia.
In 2005-2007, he was integrally involved in the conducting some of the 25 free kidney disease screening events that helped more than 1,800 West Virginians, many of which were in conjunction with the NKF of the Alleghenies’ Kidney Early Evaluation Program. He assisted in the garnering of political support of state government for showcasing the screening programs and World Kidney Day recognition at the state Capitol. Mr. Abel has been a member of AAKP since 2010.
2017-2018 BOARD OF DIRECTORS
KENT BRESSLER - AAKP FIELD AMBASSADOR
In 1982, Kent was diagnosed with focal segmental glomerulosclerosis (FSGS), a disease that causes scarring in the glomerulus of the kidney and is notorious for additional health problems including large amounts of protein in the urine, loss of protein in the blood, high cholesterol, and high blood pressure. In 1987, Kent received a kidney from his brother, Kip. For the past 30 years, Kent has been on immunosuppressive drugs that are essential in guarding against rejection of the transplanted kidney but also can have harmful, long-term side effects.
Kent has participated in chronic kidney disease research reviews for the U.S. Department of Defense, as a mentor for potential transplant recipients, on the steering committee for Nephcure International, and is currently doing peer review on research being conducted by PCORI (Patient Centered Outcomes Research Institute). Kent is a registered nurse, currently working part time with Peterson Hospice and is active in his church. Kent has two daughters and four grandchildren.
TERI BROWNE, PhD, MSW, NSW-C
Ms. Browne is an Assistant Professor for the University of South Carolina in Columbia, SC. She has a Master’s in Social Work since 1995 and PhD since 2008. Ms. Browne has been working in the kidney disease field for 17 years. She started her social work career in dialysis, and worked for 13 years as a dialysis social worker across the country. She became very active in the kidney disease community in every community she has lived, leading her to local, state, national and international service for kidney disease. She served on patient and professional committees for ESRD Network 1, 9, 10 and t; serving on boards and committees for the local and national NKF; and recently on committees and projects for ASN and DOPPS including ASN’s Patient Education committee. Ms. Browne has been a member of AAKP since 1995.
LOUIS H. DIAMOND, MBChB, FCP (SA), FACP, FHIMSS
Mr. Diamond is the President of Quality in Health Care Advisory Group, LLC (QHC). He is an expert in the use of methodologies for measuring and improving quality and also involved in the development of public policy through projects focused on patient safety, health system financing, physician payment reform, quality measurement and reporting, and performance improvements. He currently serves as the following: Chair, Physician Engagement Committee, Health Information Management System Society; Member, Leadership Network, National Quality Forum (NQF); Member, Measurement Application Partnership Post-Acute Workgroup, NQF; vice Chair, End-Stage Renal Disease Network, (A QIO for the ESRD program Board; Delegate for the Renal Physicians Association to the American Medical Association House of Delegates; Member, National Priorities Partnership representing the Healthcare Information and Management Systems Society; Member, Board of Trustees, American College of Medical Quality; and Board Member, Quality Insights Holdings.
KEVIN FOWLER - AAKP FIELD AMBASSADOR
Mr. Fowler is a healthcare executive with over 30 years of Life Sciences experience in pharmaceutical commercial and R&D organizations. His career has encompassed a breadth and depth of skills and experiences. During his career, he has demonstrated leadership in sales management, training, public affairs, global marketing, patient advocacy, and patient marketing. He formed his own patient advocacy and patient engagement consulting business in 2014, “The Voice of the Patient, Inc." Based upon his personal experiences of having a pre-emptive kidney transplant in 2004, he has a deep passion for patient advocacy and patient engagement.
LISA GARNER - CHAIR OF DEVELOPMENT/PROGRAM COMMITTEE
Lisa is a kidney transplant patient from Conway, AR and is a financial and marketing professional and Mortgage Loan Officer on the Bancorp South corporate team. Her skills include financial planning, marketing and development. Lisa is an Ambassador for the Arkansas Regional Organ Recovery Agency (ARORA) and active with awareness efforts for AAKP, the PKD Foundation and the Alport Syndrome Foundation. Lisa is the former Vice President of the Conway AK Health and Rehabilitation Board, former Director of Programs and Development for the American Association of Fundraising Professionals (AFP), the former Director of Development for an Arkansas non-profit aiding those with intellectual and developmental disabilities, and a Member of the School Board and Marketing Committee for St. Joseph School. She is the past president and a member of the Conway Rotary Club, a member of the Conway Noon Chamber of Commerce, and a member of the FCLI Faulkner County Leadership. She has served previous appointments on AAKP’s Board of Directors since 2013 and is the Co-Chair of the AAKP Program and Development Committee.
Mr. Gee is President of Success Based Intervention Institute, a leadership development firm. Ted has served as an officer in the United State Army, and has held leadership roles such as President, Chief Operating Officer, Vice President of Operations and Vice president of Operational Excellence. Ted has been highly successful leading where businesses were in a cultural change or a business transition state driven by competition or burning platforms. He has led companies that produced different products in different industries, including Corning Inc., Harley Davidson, and Ingersoll rand with consistent top and bottom line results. Ted has trained in the United States and in Japan and is certified sensei in lean an six sigma tools and has trained many MBB’s, BB’s etc. that are currently leading change in organizations today. Ted is multi lingual, and has attended MIT Sloan and Chicago Graduate School of Business.
Mr. Hess is a home hemodialysis patient from Edmond, OK. He is a graduate of the University of Central Oklahoma with a major in Biology and a minor in English. Mr. Hess authored the book “Kidney Failure Won’t Stop Me”, published in July 2012. He is a former member of the ESRD Network 13 Patient Advisory Committee & the Medical Review Board. Mr. Hess has been a member of AAKP since 2010.
EDWARD V. HICKEY III - CHAIR OF VETERANS HEALTH INITIATIVE
Mr. Hickey is an attorney with O'Melveny & Myers, an international, 800 lawyer firm with 15 offices in the world’s financial and political centers. He is a member of the Litigation Department and Director of the firm’s eDiscovery staff attorneys, a role in which he leads all O’Melveny staff attorney operations firmwide. He served as an Infantry officer in the U.S.M.C. as a Lieutenant with postings in Quantico and Camp Pendleton. His distinguished public service career includes posts on Capitol Hill as an Administrative Assistant, as a Special Assistant at the United States Department of Commerce and, following the terror attacks of September 11, 2001, as the Senior Advisor for Homeland Security for the Director of the Office of Personnel Management under President George W. Bush. At OPM, Mr. Hickey also served as liaison to Veteran Service Organizations nationwide, including the Vietnam Veterans of America, AMVETS, the Veterans of Foreign Wars and the American Legion. Mr. Hickey coordinated extensively with elected leaders and staff in the U.S. House and Senate as well as the White House to represent veteran stakeholder interests in the preservation of veteran’s legal rights during reforms to U.S. Civil Service laws. He is a recipient of a Silver Helmet Award from AMVETS.
In addition to his role at O’Melveny & Myers, Mr. Hickey is actively involved with community service efforts in California through the Inner City Law Center of Los Angeles, which services veterans and their families in the Los Angeles, California area. He is also active in the Armed Forces Committee and Veterans Legal Service Project of the Los Angeles County Bar Association, which works to identify and address opportunities to assist veterans, active military personnel, and reservists with their legal needs.
DOUG JOHNSON, MD
A Vanderbilt-trained Internist, Dr. Johnson is Director and Vice Chair of the Board of Dialysis Clinic, Inc. (DCI). He has grown DCI’s CKD initiative into the Reach Kidney Care program, addressing needs by CKD stage, with care coordinators, nutrition counseling, and a social worker. The team treats 3,600 patients and seeks to understand their health goals and educate them about CKD, options (e.g., preemptive transplant) and how to live fully, minimize CKD impact, and slow progression. RKC will be in CMS ESCO project demos in TN, SC, and NY. Doug also serves at DCI Donor Services, Inc. and sees patients twice a week.
JANICE LEA, MD, MSC, FASN
Janice P. Lea, MD, MSc, FASN is a professor of medicine at Emory University and is board-certified in nephrology and hypertension. Dr. Lea graduated from the University of Texas at Austin with a degree in biology. She earned her medical degree at the University of Texas Medical Branch at Galveston and completed her residency in internal medicine and a nephrology fellowship at Emory University-affiliated hospitals. She also received an MSc in clinical research from Emory’s Rollins School of Public Health.
Dr. Lea is the chief medical director of Emory Dialysis and is a nationally renowned expert in hypertension - designated a “Clinical Specialist in Hypertension” by the American Society of Hypertension. READ MORE
JAMES W. MYERS III - CHAIR OF STRATEGIC COMMUNICATIONS COMMITTEE, AAKP FIELD AMBASSADOR
Polycystic Kidney Disease (PKD) runs in Jim’s family. He has lost 5 family members to PKD, including his father. Because of my family’s history, he was diagnosed at the age of 25, and was able to put off dialysis until the age of 58. He was on dialysis for 4 years and received a kidney transplant on April 27th, 2016.
Jim is currently employed by the Crown Point Community School Corporation as a substitute teacher. He enjoys working with children, especially those with special needs. Jim is a very active kidney advocate with many organizations. His specialty is the ability to utilize social media to help fellow kidney patients and to raise awareness of the plights of the kidney patient. He is a very experienced advocate both at home and on Capitol Hill with his Members of Congress.
WILLIAM K. "BILL" MURRAY (in Memory 1962-2018)
Bill was a self-employed plumber for his company, Shamrock Plumbing, until chronic kidney disease (CKD) and end-stage renal disease (ESRD) forced him to shutter it and take disability. He was biopsy diagnosed with IgA Nephropathy in 1996, at which point his nephrologist told him that he would require dialysis to live. He followed doctor's orders, including changing lifestyle and diet restrictions along with a mind-boggling amount of medicine. He spent years researching his disease and all of his treatment options. He started on peritoneal dialysis (PD) for the first 10 months, but, because of weight gain and having to constantly use the highest strength solution due to his diabetes, he made the switch to home hemodialysis (HHD). He has continued this mode of treatment very successfully since. Bill is an active advocate with a passion for early detection, education, organ availability, and donor support.
DAVID RODRIGUEZ - AAKP FIELD AMBASSADOR
In 2008 David was living in Austin, TX when he was diagnosed with focal segmental glomerulosclerosis (FSGS). In 2011 David received his kidney transplant through the Pair Exchange Donation Program from University Transplant Center in San Antonio where he currently resides for 7 years.
Born and raised in Brownsville, TX, David serves as a patient advocate and spokesperson for organ, tissue and eye donation, leading awareness campaigns about the benefits of organ donation throughout the Texas border regions from Brownsville to El Paso, including Corpus Christi and San Angelo. David has volunteered for National Kidney Foundation, Texas Kidney Foundation, Texas Organ Sharing Alliance, and University Health System. As a member of the Advocacy Committee, he has lobbied for the National Kidney Foundation at our Nation’s Capital in Washington, D.C. and the Texas State Legislature on behalf of the Texas Kidney Foundation. Professionally, David is a former Patient Navigator at the University Transplant Center. He also served in serval leadership positions in local, state and national political campaigns. David likes to read history and biographies, golf and the San Antonio Spurs basketball team.
Ms. Ruff is a freelance writer for the Charlotte Observer and author of the non-fiction book The Reluctant Donor. The Reluctant Donor was a Finalist in the MIPA book award and also received the 2015 Illumination book award. She has been published in Chicken Soup for the Soul books. She is a living kidney donor and serves on the executive Board of Directors at AAKP, the Living Donor Council of the National Kidney Foundation and volunteers for the PKD Foundation. Passionate about kidneys, Suzanne speaks, writes and volunteers about all aspects of kidney disease, organ donation and the gift of another day.
LANA SCHMIDT, MBA
Ms. Schmidt is a hemodialysis patient from Liberty, IL, with a MBA – Masters in Business Administration and is Owner of Strategic Marketing Specialists. Lana is a member of American Kidney Fund, National Kidney Foundation, Renal Network 10, ESRD Form and several other Renal Organizations. Lana is currently on the AAKP Patient committee and was a speaker/presenter at the 2010 AAKP Convention on “Living with a Chronic Illness; Maintaining Health and Wellness.” Lana also started the Kidney Patients Support Group in Quincy, IL and Hannibal, MO.
Mr. Toner is the Life sciences executive with experience in both the pharmaceutical and biotechnology markets and a focus on specialty and nephrology products. Following a 20+ year career at Abbott Laboratories, Scott has worked as a consultant and employee with several start-up firms to bring innovative biotechnology products to market.
Ms. Tyler is a kidney donor and former Representative of Arkansas' District 45 in Conway, Arkansas. Ms. Tyler is a well-known business in Arkansas having worked in personnel management for Carrier Air Conditioning, United Technologies and United Broadcasting Corporations before joining Acxiom Corporation. She now serves as the Senior Organizational Development Leader for the company. She also served as a Board Member of the National Kidney Foundation and was past President of the National Kidney Foundation of Arkansas.
DAVID M. WHITE - AAKP FIELD AMBASSADOR
David M. (Dave) White, a healthcare consultant with expertise in patient-centered care, patient engagement, and kidney disease awareness and prevention, is a grateful kidney transplant recipient and a veteran of in-center hemodialysis, in-center nocturnal hemodialysis, and peritoneal dialysis. His mission is to promote population health through advocacy and servant leadership. Dave serves on the boards of directors of the American Association of Kidney Patients, the Kidney Health Initiative, and the Veterans Transplantation Association, chairs the Kidney Health Initiative Patient and Family Partnership Council, co-chairs the Patient-Centered Outcomes Research Institute's Advisory Panel on Patient Engagement, and is a member of the American Society of Transplantation Transplant Community Advisory Council, the ESRD NCC Health Services Advisory Group, the National Kidney Foundation Kidney Advocacy Committee, and the Quality Insights Mid-Atlantic Renal Coalition Patient Advisory Committee. He enjoys public speaking, writing and exercise, and has made regional and national television appearances as a patient advocate. A United States Army veteran, Dave lives in Hillcrest Heights, Maryland with his wife and hero Hilva.