By Melissa Bensouda, AAKP Ambassador Photo: Representing Missouri at RPA Advocacy Day on Capitol Hill – Dr. Gary Singer, MD; Melissa Bensouda, AAKP Ambassador MO; Kinza Bensouda (daughter) At one point in my childhood I had dreamed of becoming a nurse.
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Our Blog
AAKP strives for change by promoting and celebrating the importance of kidney health for patients across the country. This blog will allow you to connect with experts, researchers, staff and volunteers surrounding our ongoing advocacy for healthy kidneys.
AAKP BOD and Ambassador Dave White Describes his Experience at the 2018 Summer Transplant Games of America
By AAKP BOD and Ambassador, Dave White Dave White at the Transplant Games of America I heard a supporter yell “Go Maryland!” while I was chugging my way around the last turn into the home stretch. I saw three runners ahead of me and said to myself “oh well, no medal today.
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Grayson Lives On – Potter’s Syndrome (posted August 24, 2018)
By Kent Bressler, AAKP BOD and Ambassador My nephew, Todd Bressler, is a kind, mellow, hardworking father of three. He and his wife Shanna found out that their fourth child, who they would name Grayson, would be born without kidneys and profoundly limited lung function.
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Raise Your Voice! The PATIENTS Demonstration Act restricts patient choice! (posted August 14, 2018)
The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the U.S., believes The Dialysis PATIENTS Demonstration Act (H.R. 4143 / S. 2065) severely restricts patient freedom of choice. CLICK HERE to take action on this important issue.
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A Message from AAKP President, Paul Conway (July 2018)
Happy summer to every AAKP member and family! The AAKP team hopes you are enjoying yourselves this summer – AAKP started ours off with a BANG at our 43rd National Patient Meeting in St.
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Skin Cancer and Transplant Patients (Posted July 10, 2018)
Written By: Suzanne Ruff, AAKP Board of Director’s member Sun! Many of us know to protect our skin, but if you’re a kidney transplant recipient, it is especially critical! Dr. Steven F. Wolfe is a fellow of the American Academy of Dermatology and Board Certified with a practice in Mooresville, North Carolina.
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AAKP Ambassador, Iya Bekondo-Granatella Blogs About Her Experience at AAKP’s National Patient Meeting (Posted June 28, 2018)
Written By: Iya Bekondo-Granatella, AAKP Field Ambassador and Founder of the Iya Foundation Inc. Read on the blog at: http://theiyafoundation.org/aakp2018meeting/ I had the privilege of attending the 43rd Annual National Kidney Patient Meeting hosted by the American Association of Kidney Patients (AAKP) in St. Petersburg, Florida.
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My Motivation for the AAKP Pediatric Pals Newsletter (Posted June 25, 2018)
Written By: Jim Myers; AAKP Board of Director’s member, Ambassador for the state of Indiana, and contributing editor of AAKP’s Pediatric Kidney Pals e-newsletter I have been asked to write about my motivation for the AAKP Pediatric Kidney Pals Newsletter. It’s a good question.
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A Message from AAKP President, Paul Conway (Posted May 2018)
Happy spring to our AAKP Members and Allies! We are well on our way to our National Patient Meeting in St. Petersburg, FL. By the time many of you read this message, some of you will be reading it at the annual conference!
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My Lupus Story (posted May 29, 2018)
Written by: Iya Bekondo, AAKP Ambassador
It was the year 2000, and I had just relocated to the United States. Word that both of my kidneys had failed was no longer news to me and my family; having suffered from Nephrotic Syndrome since age 7.
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