Correspondence – Page 4

Of Presidents, Policies, and Patients

July 9, 2020

Former U.S. Civil Service Director Kay C. James recognizing Office of Personnel Management Chief of Staff Paul T. Conway, Sr. Advisor Ed Flynn and Sr. Advisor for Homeland Security Edward V. Hickey III for their efforts to help secure Congressional authorization of the U.S. Department of Homeland Security in 2002. July 10, 2020 Paul T.

Thoughts on Juneteenth, From AAKP President Richard Knight

June 19, 2020

Mr. Knight is a former hemodialysis patient who received a kidney transplant for a living donor 14 years ago. AAKP is the largest kidney patient organization in America with a proud 50 year history of matching patients to companies conducting clinical trials for new therapeutics, diagnostics and devices.

Protecting Access to Pain Relief (PAPR) Coalition, Request for Comment entitled “Management of Acute and Chronic Pain”

On behalf of the undersigned members of the Protecting Access to Pain Relief (PAPR) Coalition, please find written comments in response to the Request for Comment entitled “Management of Acute and Chronic Pain” (Docket No. CDC-2020-0029) issued by the Centers for Disease Control and Prevention (CDC).

June 17, 2020

Doctors Flummoxed By Long-Term Organ Damage In COVID-19 Survivors

May 11, 2020

Talking Points Memo (TPM)By Josh Kovensky We still don’t know how much we don’t know about COVID-19. The immediate effects of the disease are devastating.But what has confronted doctors and patients alike since American hospitals began to fill up in March has been another, deeply sobering prospect:

Patient Organizations Engage on All Levels of COVID-19 Advocacy and Education

May 11, 2020

ASN KidneyNewsBy Eric Seaborg Like every corner of the medical community, kidney patient advocacy groups have mobilized in response to the COVID-19 pandemic.

Consortium for Citizens with Disabilities

April 22, 2020

Download the official letter April 21, 2020 The Honorable Steven T.

Advocate Letter Supporting Nondiscrimination

Representing millions of patients, people with disabilities and older adults, our organizations are writing to express our strong and urgent support for the Department’s Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19) pandemic comply with federal nondiscrimination laws.

April 17, 2020

epresenting millions of patients, people with disabilities and older adults, our organizations are writing to express our strong and urgent support for the Department’s Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19)

March 13, 2020 – Joint letter for $3 billion request for NIH over FY 2020, including increase for NIDDK

March 13, 2020

March 13, 2020 Dear Chairman DeLauro, Chairman Blunt, Representative Cole, and Senator Murray: On behalf of the undersigned organizations, representing kidney patient advocates and health professionals dedicated to improving patient care, thank you for your steadfast commitment to the National Institutes of Health (NIH)

February 14, 2020 – Dental Access Letter to HHS Secretary Azar

We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.

February 18, 2020

We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS)

Message From AAKP President: Winter 2019

February 1, 2019

Welcome to 2019! As we enter the new year, I want to thank AAKP’s professional staff as well as our loyal patients, caregivers, and professional members for all of their support during a very successful 2018.