Talking Points Memo (TPM)By Josh Kovensky We still don’t know how much we don’t know about COVID-19. The immediate effects of the disease are devastating.But what has confronted doctors and patients alike since American hospitals began to fill up in March has been another, deeply sobering prospect:
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Correspondence
Patient Organizations Engage on All Levels of COVID-19 Advocacy and Education
ASN KidneyNewsBy Eric Seaborg Like every corner of the medical community, kidney patient advocacy groups have mobilized in response to the COVID-19 pandemic.
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Consortium for Citizens with Disabilities
Advocate Letter Supporting Nondiscrimination
Representing millions of patients, people with disabilities and older adults, our organizations are writing to express our strong and urgent support for the Department’s Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19) pandemic comply with federal nondiscrimination laws.
epresenting millions of patients, people with disabilities and older adults, our organizations are writing to express our strong and urgent support for the Department’s Office for Civil Rights to issue additional guidance to ensure that schemes to ration scarce health care resources during the coronavirus disease 2019 (COVID-19)
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March 13, 2020 – Joint letter for $3 billion request for NIH over FY 2020, including increase for NIDDK
March 13, 2020 Dear Chairman DeLauro, Chairman Blunt, Representative Cole, and Senator Murray: On behalf of the undersigned organizations, representing kidney patient advocates and health professionals dedicated to improving patient care, thank you for your steadfast commitment to the National Institutes of Health (NIH)
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February 14, 2020 – Dental Access Letter to HHS Secretary Azar
We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS) will reform regulations so that fewer Americans suffer kidney failure, more options are available for dialysis patients, and more organs are available for transplant.
We applaud your efforts to deliver on President Trump’s Advancing American Kidney Health Initiative. You have stated that the U.S. Department of Health and Human Services (HHS)
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Message From AAKP President: Winter 2019
Welcome to 2019! As we enter the new year, I want to thank AAKP’s professional staff as well as our loyal patients, caregivers, and professional members for all of their support during a very successful 2018.
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April 23, 2018 –Request Funding for National Institutes of Health (NIH)
To download the official letter – click here.
April 23, 2018 Dear Chairman Cole, Chairman Blunt, Representative DeLauro, and Senator Murray:
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March 19, 2018 – Friends of NIDDK Request Funding for National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
February 28, 2018 – Dialysis PATIENTS Demonstration Act of 2017 (H.R. 4143)
ASN represents more than 18,000 physicians, scientists, nurses, and other health
professionals dedicated to improving the lives of people with kidney diseases. The
society’s membership includes approximately 90 percent of the nephrologists in the
United States. ASN is a not-for-profit organization dedicated to promoting excellence in
kidney care and ensuring access to patient-centered high-quality care, regardless of
socioeconomic status, geographic location, or demographic characteristics.
ASN represents more than 18,000 physicians, scientists, nurses, and other health
professionals dedicated to improving the lives of people with kidney diseases. The
society’s membership includes approximately 90 percent of the nephrologists in the
United States.
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