AMERICAN ASSOCIATION OF KIDNEY PATIENTS
FOR IMMEDIATE RELEASE:
March 26, 2018
(800) 749-AAKP / firstname.lastname@example.org
LARGEST KIDNEY PATIENT ORGANIZATION JOINS GOUT ALLIANCE
AAKP CALLS GOUT A MEDICAL AND WORKFORCE ISSUE AMONG KIDNEY PATIENTS
Washington, D.C. – The American Association of Kidney Patients (AAKP), America’s largest independent and patient-lead kidney advocacy organization, announced its participation in The Alliance for Gout Awareness. AAKP has joined the Alliance as a Steering Committee Member during National Kidney Month and brings a substantial national patient and caregiver reach to the Alliance.
The Alliance for Gout Awareness is a national coalition of diverse consumer and patient stakeholders who will collaborate to reduce popular stigma and empower patients by improving public understanding of gout and available treatments. Members will collaborate on educational resources, materials and tools for both patients and medical professionals. The Alliance also includes: Alliance for Patient Access; American Kidney Fund; Global Healthy Living Foundation; National Black Nurses Association; Rheumatology Nurses Society; U.S. Pain Foundation.
Paul T. Conway, President of the American Association of Kidney Patients stated, “Kidney patients, through no fault of their own and like so many other Americans who manage complex chronic diseases, are prone to extremely painful gout for various underlying medical reasons. Due to kidney function loss and failure or kidney transplants, kidney patients cannot treat their pain with nonsteroidal anti-inflammatory drugs (NSAIDS) and depend upon steroids and steroidal injections for pain management. AAKP joined the Alliance because we are committed to educating medical professionals and patients on how better treatments can reduce suffering and return patients to an active life – including work.” Conway is transplant recipient and a former Chief of Staff for the U.S. Department of Labor. AAKP helps kidney patients identify disease early, manage their conditions and encourages patients to stay in the workforce and off of disability whenever possible.
Josie Peterson, Director of the Alliance for Gout Awareness stated, “We are excited to launch the Alliance for Gout Awareness and are grateful for AAKP’s participation in this critical initiative. For too long, stigma and misconceptions around gout have persisted. By working with stakeholder groups to raise awareness about the condition and its treatments, the Alliance looks forward to helping improve patient outcomes.”
Gout is a form of arthritis impacting tens of millions of Americans. Historical myths include misperceptions that gout is the fault of the sufferer due to a lack of self-control or an over-indulgence of rich foods and alcohol. Lifestyle changes may reduce gout episodes, but many patients require a medication regimen due to an underlying chronic disease. By heightening public awareness and addressing common misconceptions, the AAKP along with the Alliance for Gout Awareness will encourage patients to acknowledge the disease impact and seek the treatment they need. To learn more about the Alliance visit www.goutalliance.org. To learn more about helping AAKP further engage in gout solutions for kidney patients, and to receive the latest education and information to help understand and manage gout, sign-up at https://www.surveymonkey.com/r/AAKPGout or visit www.aakp.org/join.
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